The Voice of Rare Disease
Patients in Europe
Apply for the EURORDIS Winter School on Scientific Innovation & Translational Research 2019!
The second edition of the EURORDIS Winter School on Scientific Innovation & Translational Research will take place from 11 – 15 March, 2019 at the Imagine Institute in Paris.
This unique training, organised in partnership with Solve-RD, offers patient advocates the opportunity to deepen their understanding of how pre-clinical research translates into real benefits for rare disease patients.
Patients are experts on their diseases and have a valuable contribution to make to meaningful rare disease research, policies and services. All EURORDIS trainings sit under the umbrella of the EURORDIS Open Academy. They are designed to empower advocates with the confidence and knowledge needed to bring their expertise to discussions on health care, research and medicines development with policy makers, industry and scientists.
EURORDIS Open Academy trainings are made up of on-site trainings and online modules, which are available to everyone around the world and at no cost. Simply create a login and start learning at a time and place that suits you!
Since the first EURORDIS Summer School in 2008, more than 500 patient advocates and researchers from over 40 countries representing more than 75 diseases have participated in Open Academy trainings.
Apply now for the EURORDIS Winter School!
The EURORDIS Winter School was launched last year as part of the EURORDIS Open Academy.
If you are a patient advocate wanting to learn more about how research is carried out and how patients can influence research, apply for the EURORDIS Winter School 2019.
The Winter School consists of one week of face-to-face training (11 – 15 March in Paris) and training modulesthat are also available for anyone to complete online.
Applicants should clearly set out in their application how they expect to benefit from the training, which covers topics including genetics, diagnosis, data sharing, gene therapy, and drug repurposing, as well as how they plan to use and share the experience gained during the Winter School with their networks. Preference will be given to applicants who are, or are planning on, engaging in European Reference Network research activities and/or other research projects and who can demonstrate specific interests in diagnostics and pre-clinical research.
Costs for accommodation, training materials and most meals are covered by EURORDIS. Fve fellowships will also be awarded to cover travel costs to a maximum of 250€.
Apply for the EURORDIS Summer School 2019 from September
The EURORDIS Summer School also sits under the umbrella of the Open Academy and is made up of one week of face-to-face training in Barcelona in June and online training modules freely accessible to everyone. The application process for the Barcelona on-site training in June 2019 will open mid-September; details on how to apply will be posted here.
The training aims to provide participants with the knowledge and skills needed to become experts in medicines research and development. Over 20 EURORDIS Summer School trainers provide the training each year.
A Spanish edition of the Summer School also takes place in parallel to the English version and is open to Spanish speakers from around the world.
Support the EURORDIS Open Academy
If you're interested in partnering with EURORDIS to support initiatives including the EURORDIS Open Academy contact Céline Schwob: celine.schwob@eurordis.org.
Eva Bearryman, Communications Manager, EURORDIS
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