CIENCIASMEDICASNEWS

Requests for “unvaccinated” blood lead to delays and patient harm

https://www.news-medical.net/news/20260406/Requests-for-e2809cunvaccinatede2809d-blood-lead-to-delays-and-patient-harm.aspx A growing demand for “unvaccinated” blood is challenging modern transfusion systems; now, real-world data reveal how these requests can delay treatment, strain resources, and put vulnerable patients at risk.

No one rides alone 6 April 2026

https://rarerevolutionmagazine.com/no-one-rides-alone/ In 2019, Clive Phillips received a diagnosis of multifocal motor neuropathy (MMN), a rare, chronic autoimmune disorder causing progressive asymmetrical muscle weakness. It affects 1-2 in every 100,000 cases in North America and Europe1 and is a condition for which there is no cure. Treatment of intravenous immunoglobin (IVIg) can lead to improved motor function, with patients requiring regular infusions to maintain improvement.

The silent crisis in our community – why amyloidosis awareness matters now 6 April 2026

https://rarerevolutionmagazine.com/the-silent-crisis-in-our-community-why-amyloidosis-awareness-matters-now/ As the dust settles on Amyloidosis Awareness Month, Jonathan L Dotson, executive director of Friendship That Gives, wants to see the momentum continue throughout the year, to increase awareness and create much-needed support systems for all those affected by this rare condition March is recognised as Amyloidosis Awareness Month, yet for many in the Black community, this disease remains largely unknown—until it is too late.

Under the skin: life with epidermolysis bullosa 6 April 2026

https://rarerevolutionmagazine.com/under-the-skin-life-with-epidermolysis-bullosa/ With personal insights from across the world, highlighting the everyday experiences of those living with epidermolysis bullosa, discover how global DEBRA groups are working hard to build connections, increase awareness and address stigmas to provide a better future for all in the EB community “It’s the worst disease you never heard of,” says Dané from South Africa, a reality that defines the experience of living with epidermolysis bullosa (EB).

Antibiotic use linked to psychological distress in pregnancy A large Japanese birth cohort study found that women who took antibiotics before or during early pregnancy were more likely to experience psychological distress.

https://www.drugdiscoverynews.com/antibiotic-use-linked-to-psychological-distress-in-pregnancy-17105

‘Medical nutrition’ helps keep my son, and many others, healthy. But insurance won’t cover it Medical foods are regulated differently than drugs, allowing insurers to classify them as optional

https://www.statnews.com/2026/04/06/medical-nutrition-mitochondrial-disease-insurance-coverage/ By Heather GatcombeApril 6, 2026 Gatcombe is on the Board of Trustees of the United Mitochondrial Disease Foundation and is an assistant professor at Emory University School of Medicine.