Remedi4all Hackathon - THE EUROPEAN PLATFORM FOR MEDICINES REPURPOSING

https://remedi4all.org/resources/remedi4all-repurposing-academy/remedi4all-hackathon/ REMEDi4ALL, a drug repurposing initiative in which EURORDIS is a partner, is accepting applications for its 2026 Hackathon. Designed for early-career researchers, the week-long programme offers hands-on experience in drug repurposing through multidisciplinary teamwork, expert guidance and collaboration with patient experts. Participants will work on real-world challenges while developing the skills needed to bring repurposed treatments closer to patients. https://remedi4all.org/

Patient Partnership Webinar Series: Transition in Healthcare May 2026

https://www.eurordis.org/patient-partnership-webinar-series/ Join our new Patient Partnership webinar series, Transition in Healthcare: Turning Recommendations into Practice, on translating ERN recommendations for the transition from paediatric to adult healthcare into practice. The first webinar, on 30 June, will focus on implementation across healthcare systems, while the second, on 1 July, will showcase ERN tools and initiatives supporting effective transitions for people living with rare diseases. Webinar #1: Setting the scene: From evidence to implementation in transition in healthcare 🗓️ Date: 30 June 2026 ⏰ Time: 12:00-13:30 CEST Webinar #2: ERN innovative initiatives – Developing tools and resources for an effective transition 🗓️ Date: 1 July 2026 ⏰ Time: 12:00-13:15 CEST

Highlights from Prague: ECRD 2026 sets the course for coordinated action June 2026

https://www.eurordis.org/highlights-from-ecrd-2026/ Our 13th European Conference on Rare Diseases & Orphan Products (ECRD 2026) has concluded after two days of landmark discussions and strong political momentum. Held under the theme Rare Diseases in a Changing and Competitive Europe, the conference brought together patients, policymakers, healthcare professionals, researchers and industry – online and in Prague on 3–4 June – around a single, urgent message: Europe needs a coordinated, comprehensive EU Action Plan on Rare Diseases, and the time to act is now.

Practical solutions for real challenges: our ECRD 2026 Poster Pitch winners June 2026

https://www.eurordis.org/ecrd-2026-poster-pitch-winners/ ECRD 2026 showcased hundreds of posters mapping the challenges facing the rare disease community and the practical solutions being developed by those closest to them. https://www.rare-diseases.eu/posters/ During the conference, our two Poster Pitch sessions invited top-scoring authors to present their work live. The winners, Romain Alderweireldt and Carlotta Emili, explored two very different challenges: Romain’s poster showed how patient-led data sharing could help researchers find answers in Marfan syndrome, while Carlotta’s examined how ultra-rare gene therapies can remain available when standard pricing models fall short.

Personalizing Patient Care in HR-Positive/HER2-Negative Breast Cancer Authors: Aditya Bardia, MD, MPH, FASCO

https://www.medscape.org/viewarticle/personalizing-patient-care-hr-positive-her2-negative-breast-2026a1000jqp?page=1&src=wnl_tpal_260617_mscpedu&uac=148436CN&impID=8432151

Piecing Together Insights in the Prader-Willi Syndrome Puzzle: Insights to Integrating Novel Care Options Authors: Parisa Salehi, MD; Jessica Duis, MD, MS, FAAP; Anthony P. Goldstone, MA, BM BCh, MRCP, PhD

https://www.medscape.org/viewarticle/piecing-together-insights-prader-willi-syndrome-puzzle-2026a1000jwu?page=1&src=wnl_tpal_260617_mscpedu&uac=148436CN&impID=8432151

AI tool could speed antibiotic development

https://www.nih.gov/news-events/nih-research-matters/ai-tool-could-speed-antibiotic-development At a Glance Researchers developed and tested a system to improve the antibacterial effects of existing compounds. This system could help quickly create new antibiotics to overcome antibiotic resistance.