Mogamulizumab in Danish Patients With CTCL

Investigating Results From the MAVORIC Trial in Patients With CTCL

Increased Dosing Interval of Mogamulizumab in Patients With CTCL by CheckRare Staff| Published on: Jul 20, 2026

Increased Dosing Interval of Mogamulizumab in Patients With CTCL by CheckRare Staff| Published on: Jul 20, 2026 Christiane Querfeld, MD, PhD, dermatologist and and Director, Multidisciplinary Cutaneous Lymphoma Program, Professor at the City of Hope National Medical Center and the Beckman Research Institute, discusses the results of a new drug trial that increased the dosing interval of mogamulizumab in patients with CTCL. https://checkrare.com/increased-dosing-interval-of-mogamulizumab-in-patients-with-ctcl/

Catching the Clues, Changing the Course of Lysosomal Storage Disorders Professor Yoshikatsu Eto, Dr. Nicole Muschol, Professor Patrício Aguiar, Dr. Robert Hopkin

Catching the Clues, Changing the Course of Lysosomal Storage Disorders Illuminating the Complex Pathways of Rare Disease with Fabry Disease and Alpha-Mannosidosis in Focus Coverage of the 15th International Congress of Inborn Errors of Metabolism (ICIEM 2025) https://checkrare.com/catching-the-clues-changing-the-course-of-lysosomal-storage-disorders/

Rare Woman

https://editions.rarerevolutionmagazine.com/html5/reader/production/default.aspx?pubname=&edid=e0508b93-1cde-4785-b9ae-c36724bde55a&pnum=4 When Alena Yartseva (Kuratova) founded the DEBRA Russia in 2011, she set out to support Russian families living with epidermolysis bullosa (EB) and ichthyosis. Fifteen years on, with one of the world’s largest registries in genetic skin disease, a network of specialist centres across the country and federal funding for every EB patient now secured, her foundation has reached a conclusion drawn from its own data: the emotional condition of the mother is tracking her child’s clinical picture, and the centre of rare disease care needs to move with it.

Beyond the diagnosis—rights, access and everyday realities 15 July 2026

https://rarerevolutionmagazine.com/beyond-the-diagnosis-rights-access-and-everyday-realities/ Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare, autoimmune disease affecting the peripheral nervous system. Individuals living with CIDP often face systemic barriers preventing them from accessing knowledgeable expert care, basic rights and meaningful inclusion. Drawing on the collective experience of European advocates Gabi Faust, Jean-Philippe Plançon, Marian Ciopec and Nancy Di Salvo we discuss the geographical lottery of treatment access, workplace hurdles and global policy gaps preventing autonomy Written by Nicola Miller, RARE Revolution Community insights from Gabi Faust, chair, GBS CIDP Self-Help Organisation Jean-Philippe Plançon, president, EPODIN (European Patients Organization for Dysimmune and Inflammatory Neuropathies) Marian Ciopec, executive manager, EPODIN Nancy Di Salvo, international affairs director, GBS-CIDP Foundation International

Digital spaces: improving HIV prevention through social media among female sex workers in Cameroon Hassanatu Blake* [1,2] , Mercy Njah [3] , Mary Mah Babey [3] , Eveline Mboh Khan [3] , Anna Junkins [4] , Jodie Dionne [5] , Ann Montgomery [1] , Teneasha Washington [1] , Nataliya Ivankova [6] , Tamika Smith [1] , Pauline Jolly [4] + +...

https://www.academia.edu/3071-0324/2/2/10.20935/AcadPHealth8268 Introduction: Approximately 24.3% of female sex workers (FSWs) in Cameroon are living with human immunodeficiency virus (HIV). Social media platforms present new opportunities to improve HIV prevention efforts. This study examines the acceptance of Secret Facebook Groups (SFG) for HIV prevention education among FSWs in Western Cameroon and identifies barriers, facilitators, and recommendations for future interventions. Materials and methods: We conducted a qualitative study using semi-structured phone interviews with 20 FSWs aged ≥18 years during June 2022. We used purposeful convenience sampling to recruit participants from a 2021 parent study. Interview questions addressed social media platforms used for learning, challenges, and benefits of SFG for HIV prevention education, and recommendations for future interventions. We conducted thematic analysis using NVivo software with independent dual coding. Results: Five major themes emerged: (1) Facebook and WhatsApp were the most-used platforms; (2) FSWs acquired HIV prevention knowledge, including strategies and prevention tools; (3) challenges of using SFG to learn about HIV prevention included poor connectivity and infrastructure, limited data, educational level limitations, and financial support; (4) benefits included HIV prevention information, peer learning, privacy, and support; and (5) recommendations included WhatsApp as an alternative platform, improved communication, and technical support. Notably, participants consistently requested financial support, suggesting sustainability challenges for social media-based interventions in resource-limited settings. Conclusions: FSWs in this sample accepted SFG-based HIV prevention education because the intervention used a familiar platform, accommodated varying literacy levels, and provided privacy. However, better connectivity, higher education levels, and financing are needed to improve the intervention. Findings describe a digitally connected subgroup and cannot be generalized to other marginalized FSWs in Cameroon without reliable technology access. Future research should explore participatory approaches, evaluate effectiveness, and examine sustainability without external financial support. https://www.academia.edu/journals/academia-global-and-public-health/articles?source=journal-top-nav Receso Invernal del grupo de blog´s de "salud equitativa"... los días 26, 27, 28, 29, y 30 de julio de 2026, los blog´s no se actualizarán... pedimos disculpas por ello, pero esperamos sepan entender que merecemos un descanso... regresaremos el 31 de julio si Dios lo permite... muchas gracias a todos los lectores y seguidores (que cada vez son más)... hasta entonces... El editor... Grupo de blog´s de “salud equitativa”, cuyo titular es Víctor Norberto Cerasale Morteo, en Salta, Argentina… https://wwweldispreciau.blogspot.com/ https://eldispensador.blogspot.com/ https://saludequitativa.blogspot.com/ https://herenciageneticayenfermedad.blogspot.com/ https://elbiruniblogspotcom.blogspot.com/ Winter Break for the "Equitable Health" Blog Group... the blogs will not be updated on July 26, 27, 28, 29, and 30, 2026... We apologize for this, but we hope you understand that we deserve a break... We will return on July 31, God willing... Many thanks to all our readers and followers (whose numbers are constantly growing)... Until then... The Editor... "Equitable Health" Blog Group, owned by Víctor Norberto Cerasale Morteo, in Salta, Argentina... https://wwweldispreciau.blogspot.com/ https://eldispensador.blogspot.com/ https://saludequitativa.blogspot.com/ https://herenciageneticayenfermedad.blogspot.com/ https://elbiruniblogspotcom.blogspot.com/ Pause hivernale pour le groupe de blogs « Equitable Health »… Les articles ne seront pas mis à jour les 26, 27, 28, 29 et 30 juillet 2026… Nous vous prions de nous excuser pour ce désagrément, mais nous espérons que vous comprendrez que nous méritons bien une pause… Nous serons de retour le 31 juillet, si Dieu le veut… Un grand merci à tous nos lecteurs et abonnés (dont le nombre ne cesse de croître)… À bientôt… La rédaction… Le groupe de blogs « Equitable Health », propriété de Víctor Norberto Cerasale Morteo, à Salta, en Argentine… https://wwweldispreciau.blogspot.com/ https://eldispensador.blogspot.com/ https://saludequitativa.blogspot.com/ https://herenciageneticayenfermedad.blogspot.com/ https://elbiruniblogspotcom.blogspot.com/ Winterpause für die Bloggruppe „Gerechte Gesundheit“ … Die Blogs werden am 26., 27., 28., 29. und 30. Juli 2026 nicht aktualisiert. Wir bitten um Entschuldigung und hoffen auf Ihr Verständnis, dass wir uns eine Auszeit verdient haben. Wir sind am 31. Juli wieder für Sie da, so Gott will. Vielen Dank an alle unsere Leser und Follower (deren Zahl stetig wächst). Bis dahin … Die Redaktion der Bloggruppe „Gerechte Gesundheit“, Inhaber: Víctor Norberto Cerasale Morteo, Salta, Argentinien. https://wwweldispreciau.blogspot.com/ https://eldispensador.blogspot.com/ https://saludequitativa.blogspot.com/ https://herenciageneticayenfermedad.blogspot.com/ https://elbiruniblogspotcom.blogspot.com/ Зимний перерыв для блог-группы "Equitable Health"... блоги не будут обновляться 26, 27, 28, 29 и 30 июля 2026 года... Приносим свои извинения, но надеемся на ваше понимание, что мы заслужили перерыв... Мы вернемся 31 июля, если Бог даст... Большое спасибо всем нашим читателям и подписчикам (число которых постоянно растет)... До тех пор... Редактор... Блог-группа "Equitable Health", принадлежащая Виктору Норберто Серасале Мортео, Сальта, Аргентина... https://wwweldispreciau.blogspot.com/ https://eldispensador.blogspot.com/ https://saludequitativa.blogspot.com/ https://herenciageneticayenfermedad.blogspot.com/ https://elbiruniblogspotcom.blogspot.com/ "इक्विटेबल हेल्थ" ब्लॉग ग्रुप के लिए विंटर ब्रेक... ब्लॉग 26, 27, 28, 29, और 30 जुलाई, 2026 को अपडेट नहीं किए जाएंगे... हम इसके लिए माफ़ी चाहते हैं, लेकिन हमें उम्मीद है कि आप समझेंगे कि हम एक ब्रेक के हकदार हैं... हम 31 जुलाई को वापस आएंगे, भगवान चाहेंगे... हमारे सभी रीडर्स और फॉलोअर्स (जिनकी संख्या लगातार बढ़ रही है) का बहुत-बहुत धन्यवाद... तब तक... एडिटर... "इक्विटेबल हेल्थ" ब्लॉग ग्रुप, जिसके मालिक विक्टर नॉरबर्टो सेरासले मोर्टेओ हैं, साल्टा, अर्जेंटीना में है... https://wwweldispreciau.blogspot.com/ https://eldispensador.blogspot.com/ https://saludequitativa.blogspot.com/ https://herenciageneticayenfermedad.blogspot.com/ https://elbiruniblogspotcom.blogspot.com/ Recesso de Inverno para o Grupo de Blogs "Saúde Equitativa"... os blogs não serão actualizados nos dias 26, 27, 28, 29 e 30 de Julho de 2026... Pedimos desculpa por isso, mas esperamos que compreendam que merecemos uma pausa... Regressaremos no dia 31 de Julho, se Deus quiser... Muito obrigado a todos os nossos leitores e seguidores (cujo número está em constante crescimento)... Até lá... A Equipa Editorial... Grupo de Blogs "Saúde Equitativa", propriedade de Víctor Norberto Cerasale Morteo, em Salta, Argentina... https://wwweldispreciau.blogspot.com/ https://eldispensador.blogspot.com/ https://saludequitativa.blogspot.com/ https://herenciageneticayenfermedad.blogspot.com/ https://elbiruniblogspotcom.blogspot.com/ Pausa invernale per il gruppo di blog "Equitable Health"... i blog non verranno aggiornati il 26, 27, 28, 29 e 30 luglio 2026... Ci scusiamo per questo, ma speriamo che comprendiate che ci meritiamo una pausa... Torneremo il 31 luglio, a Dio piacendo... Un sentito ringraziamento a tutti i nostri lettori e follower (il cui numero è in costante crescita)... A presto... Il Direttore... Gruppo di blog "Equitable Health", di proprietà di Víctor Norberto Cerasale Morteo, a Salta, Argentina... https://wwweldispreciau.blogspot.com/ https://eldispensador.blogspot.com/ https://saludequitativa.blogspot.com/ https://herenciageneticayenfermedad.blogspot.com/ https://elbiruniblogspotcom.blogspot.com/ "ஈக்விடபிள் ஹெல்த்" வலைப்பதிவுக் குழுவிற்கு குளிர்கால இடைவேளை... ஜூலை 26, 27, 28, 29, மற்றும் 30, 2026 ஆகிய தேதிகளில் வலைப்பதிவுகள் புதுப்பிக்கப்படாது... இதற்காக வருந்துகிறோம், ஆனால் எங்களுக்கு ஒரு இடைவேளை தேவை என்பதை நீங்கள் புரிந்துகொள்வீர்கள் என்று நம்புகிறோம்... எல்லாம் வல்ல இறைவனின் அருளால், ஜூலை 31 அன்று நாங்கள் திரும்புவோம்... எங்கள் வாசகர்கள் மற்றும் பின்தொடர்பவர்கள் அனைவருக்கும் மிக்க நன்றி (அவர்களின் எண்ணிக்கை தொடர்ந்து அதிகரித்து வருகிறது)... அதுவரை... ஆசிரியர்... "ஈக்விடபிள் ஹெல்த்" வலைப்பதிவுக் குழு, விக்டர் நோர்பெர்டோ செராசேல் மோர்டியோவுக்குச் சொந்தமானது, சால்டா, அர்ஜென்டினா... https://wwweldispreciau.blogspot.com/ https://eldispensador.blogspot.com/ https://saludequitativa.blogspot.com/ https://herenciageneticayenfermedad.blogspot.com/ https://elbiruniblogspotcom.blogspot.com/ “公平健康”博客组冬季休刊……博客将于2026年7月26日、27日、28日、29日和30日暂停更新……对此我们深表歉意，但希望您能理解我们需要休息……我们将于7月31日恢复更新，如果一切顺利……非常感谢所有读者和关注者（人数还在不断增长）……此致……编辑……“公平健康”博客组，由阿根廷萨尔塔省的维克托·诺贝托·塞拉萨莱·莫特奥所有…… https://wwweldispreciau.blogspot.com/ https://eldispensador.blogspot.com/ https://saludequitativa.blogspot.com/ https://herenciageneticayenfermedad.blogspot.com/ https://elbiruniblogspotcom.blogspot.com/