domingo, 31 de octubre de 2021
sábado, 30 de octubre de 2021
viernes, 29 de octubre de 2021
jueves, 28 de octubre de 2021
miércoles, 27 de octubre de 2021
martes, 26 de octubre de 2021
lunes, 25 de octubre de 2021
domingo, 24 de octubre de 2021
sábado, 23 de octubre de 2021
viernes, 22 de octubre de 2021
jueves, 21 de octubre de 2021
miércoles, 20 de octubre de 2021
martes, 19 de octubre de 2021
lunes, 18 de octubre de 2021
domingo, 17 de octubre de 2021
sábado, 16 de octubre de 2021
viernes, 15 de octubre de 2021
Patient Group Pairing | Findacure
Patient Group Pairing | Findacure
The next Student Voice Prize will give students the chance to be paired with a rare disease patient group, allowing patient advocates to raise awareness of their condition amongst the clinicians of the future, share insights and build connections! Learn more and apply now!
Pediatric biobanking and engagement: Join & share practices
Pediatric biobanking and engagement: Join & share practices
BBMRI‐ERIC and the Stakeholder Forum Patient Pillar are calling on pediatric & Rare Disease communities to engage in a network tackling pediatric biobanking and its ethical, legal, and societal challenges. Declare your interest now!
Awareness-Raising – IBTA
Awareness-Raising – IBTA
The 15th International Brain Tumour Awareness Week is taking place from 30 October to 6 November. Find out how you can participate in awareness-raising activities!
Alpha mannosidosis: Updates
Alpha mannosidosis: Updates
Are you, a family member, or someone you know living with Alpha Mannosidosis? Let them know they can connect now with others in our newest online community. If you can’t find an online community for your disease, check out the RareConnect general discussion webpage.
Rare Diseases International | Facebook
Rare Diseases International | Facebook
Follow Rare Diseases International’s new Facebook page. Stay up to date with global activities and advocacy for people living with a rare disease around the world
EURORDIS webinar on the Rare2030 survey findings
Inscripción al seminario web - Zoom
Don’t miss our webinar on the Rare2030 survey results taking place on 18 October! We will deep dive into the opinions of people living with a rare disease on remote and health care cross-border health care, and discuss how you can use the results in your own advocacy!