Consent and participation in the 100,000 Genomes Project – public attitudes

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Last Posted: Jul 22, 2018

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• Consent and participation in the 100,000 Genomes Project – public attitudes  
  Genomics England, July 18, 2018
• Cancer Scientists Have Ignored African DNA in the Search for Cures  
  J Wapner, Newsweek, July 2018
• Ethical Issues of Using CRISPR Technologies for Research on Military Enhancement.  
  Greene Marsha et al. Journal of bioethical inquiry 2018 Jul
• Incidental or secondary findings: an integrative and patient-inclusive approach to the current debate.  
  Saelaert Marlies et al. European journal of human genetics : EJHG 2018 Jul
• Developing a conceptual, reproducible, rubric-based approach to consent and result disclosure for genetic testing by clinicians with minimal genetics background  
  KE Ormond et al, Genetics in Medicine, July 6, 2018
• [What if the sperm donor has a hereditary disease? Informed consent needed for sharing medical information].  
  van der Smagt J J et al. Nederlands tijdschrift voor geneeskunde 2017 161(0) D1445
• Genomic information and a person's right not to know: A closer look at variations in hypothetical informational preferences in a German sample.  
  Flatau Laura et al. PloS one 2018 13(6) e0198249
• How do consent forms for diagnostic high-throughput sequencing address unsolicited and secondary findings? A content analysis.  
  Vears D F et al. Clinical genetics 2018 Jun
• Clinical evaluation of NIPS for women at advanced maternal age: a multicenter retrospective study.  
  Yu Bin et al. The journal of maternal-fetal & neonatal medicine : the official journal of the European Association of Perinatal Medicine, the Federation of Asia and Oceania Perinatal Societies, the International Society of Perinatal Obstetricians 2018 May 1-171
• Current ethical and legal issues in health-related direct-to-consumer genetic testing.  
  Niemiec Emilia et al. Personalized medicine 2017 Sep 14(5) 433-445

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