RARE BAROMETER VOICES
Take part in webinar to find out how you can tell EURORDIS about the impact that rare diseases have on your daily life!
Wednesday, September 21, 2016 11:00:00 AM ART - 12:00:00 PM ART
EURORDIS has recently launched a new survey on the impact of rare diseases on daily life. Take part in a webinar to find out how you can participate in the survey and use the survey results for your advocacy work. Sandra Courbier, EURORDIS Survey Manager, and Raquel Castro, Social Policy Senior Manager, will present the survey, answer any questions and inform you how the survey results will be used to improve the lives of people living with a rare disease. The webinar will be held in English. This survey is carried out through Rare Barometer Voices (http://www.eurordis.org/voices) and the Innovcare Project (http://www.eurordis.org/project-innovcare).