Rare Disease Day ® 2017

Rare Disease Day ® 2017

Don't Miss the Rare Diseases International Policy Event in Geneva To mark the occasion of Rare Disease Day 2017, Rare Diseases International, the Global Alliance of Rare Disease Patients, in partnership with the BLACKSWAN Foundation, the Swiss Foundation for Research on Orphan Diseases, and EURORDIS-Rare Diseases Europe, invite you to join people living with a rare disease and policy makers at a unique face-to-face discussion. The event is the first of its kind to be organised in Geneva and will gather international experts in the fields of public health, human rights, epidemiology, scientific research and patient advocacy to explore together avenues to address inequality and improve access to health for the more than 300 million people living with a rare disease around the world today. View the programme here.

Speakers already confirmed at the event include Ruth Dreifuss, Chair of the UN SG High-Level Panel on Access to Medicines, Dainius Pūras, UN Special Rapporteur on Health, Chris Austin, Chair of the International Rare Diseases Research Consortium, National Health Institutes, USA

If you have not yet registered, you can register online here. After registering, you will receive a confirmation email. Please be aware that places are limited - you will need to receive confirmation in order to attend.

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There is no registration fee for this event. Please be advised that accommodation and travel expenses are not covered by the organisers.