Don't miss this rare affair!
Please join us at the Hyatt Regency Huntington Beach Resort & Spa September 22-24 for a rare weekend of hope. Key rare disease stakeholders from all over the world are coming together to connect, learn, and celebrate at the 5th Annual RARE Patient Advocacy Summit and Tribute to Champions of Hope. Learn more about these events here!
Join us at Global Genes’ RARE Patient Advocacy Summit where patients, caregivers, and advocates walk away equipped with actionable next steps whether they have been recently diagnosed or have been advocating in rare disease for decades. Click here to register now!
RSVP for an unforgettable evening at our Tribute to Champions of Hope, where we honor remarkable individuals who are inspiring and innovating in the Rare Community. The evening will include meaningful presentations, entertainment, and surprise guests. Click here to register now!
This year you can look forward to a special surf experience with Mauli Ola on Saturday, September 23 from 9:00 AM - 11:00 AM. The Mauli Ola Foundation (MOF) is a nonprofit organization dedicated to providing hope and confidence to individuals living with genetic diseases. Harnessing the healing powers of the ocean, we introduce surfing and ocean-based activities as natural therapies. We are honored to share our knowledge of the ocean, family values and community. Click here to see the weekend overview.