Mol Genet Metab. 2016 May 31. pii: S1096-7192(16)30092-0. doi: 10.1016/j.ymgme.2016.05.017. [Epub ahead of print]
A framework for assessing outcomes from newborn screening: on the road to measuring its promise.
Hinton CF1, Homer CJ2, Thompson AA3, Williams A4, Hassell KL5, Feuchtbaum L6, Berry SA7, Comeau AM8, Therrell BL9, Brower A10, Harris KB11, Brown C12, Monaco J13, Ostrander RJ14, Zuckerman AE15, Kaye C16, Dougherty D17, Greene C18, Green NS19; Follow-up and Treatment Sub-committee of the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC).
Copyright © 2016. Published by Elsevier Inc.
Long-term follow-up; Newborn screening; Outcomes; Quality improvement
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