Cystic Fibrosis News Today Weekly Forum Digest

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Meeting representatives

Sep 09, 2019 04:23 pm | Tré LaRosa

Replies: 0
If you could, would you meet with your representatives in your state to talk about life with CF, about healthcare, or about any issue you’re passionate about?
What issues would you want to talk about?
What state do you live in?

Bonfires

Sep 09, 2019 04:22 pm | Tré LaRosa

Replies: 0
Recently, I hung out near a bonfire with some friends for the first time in a long time. I hadn’t sat by one in a long time so I didn’t think much of it. The next morning, I noticed my chest was tighter than usual. I realized it was probably due to the bonfire.

Have you noticed that you’ve felt similarly? Do you avoid bonfires? How do you prevent the smoke from hurting your lungs?

CF Hospital Encounter: ‘I Hope She’s Not Contagious’

Sep 09, 2019 03:24 am | Cystic Fibrosis News Moderator

Replies: 0
Columnist Hannah Buck relates a hospital trip brought on by a CF flare, and an inconsiderate stranger who stage-whispered, “I hope she’s not contagious.” Click here to read more from Hannah.
Such an awkward situation. Have you ever been through something like Hannah experienced? How did you deal with it?

Study: Amikacin Liposome Therapy Matches Tobramycin for P. aeruginosa

Sep 09, 2019 03:22 am | Cystic Fibrosis News Moderator

Replies: 0
A study suggests that amikacin liposome therapy has the same efficacy and safety as tobramycin for the treatment of P. aeruginosa in CF patients. Read more about it here.
What are your thoughts about this study and its findings?

Charity Bike Ride Will Include Virtual Riders This Year

Sep 06, 2019 12:29 am | Cystic Fibrosis News Moderator

Replies: 0

Claire’s Place Foundation’s 5th Annual Glow Ride is set for September 7th. The event will raise money in support and families affected by cystic fibrosis, and this year folks can participate virtually as well as in-person. Click here to learn more.
Have you attended this event or one like it? Would you like to attend as a virtual rider?

Blocking This Protein Complex Could Help Treat P. aeruginosa Infections

Sep 06, 2019 12:28 am | Cystic Fibrosis News Moderator

Replies: 0

A study suggests that inhibiting a pro-inflammatory protein complex called the NLRP3 inflammasome can treat chronic P. aeruginosa infections in people with CF. Read more here.
What do you think of this story?

The Kind of Friend We Deserve

Sep 05, 2019 02:59 am | Cystic Fibrosis News Moderator

Replies: 0

Using his best friend as a model, columnist Brad Dell describes the type of friend that can help a person with disease escape, cope, and find courage. Click here to read more from Brad.
Do you also have a best friend like this? If so, for how long have you know him/her?

I’m Learning to Celebrate Every Milestone

Sep 05, 2019 02:58 am | Cystic Fibrosis News Moderator

Replies: 0

Columnist Bailey Anne Vincent reflects on life with CF and the importance of celebrating every milestone, even the ones that aren’t picture-perfect. Click here to read more from Bailey.
Do you also celebrate your every milestone?