Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease | Orphanet Journal of Rare Diseases | Full Text

Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease | Orphanet Journal of Rare Diseases | Full Text

Orphanet Journal of Rare Diseases

Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease

• Libby Wood, 
• Guillaume Bassez, 
• […]
• Hanns Lochmüller 

Orphanet Journal of Rare Diseasesvolume 13, Article number: 155 (2018) | Download Citation