miércoles, 4 de septiembre de 2019

BMC Medical Ethics | Articles

BMC Medical Ethics | Articles

BMC Medical Ethics

  1. Debate

    Notwithstanding fears of overly permissive approaches and related pleas to refuse euthanasia for psychological suffering, some Belgian hospitals have declared that such requests could be admissible. However, s...
    Authors:M. Verhofstadt, K. Audenaert, K. Van Assche, S. Sterckx and K. Chambaere
    Citation:BMC Medical Ethics 2019 20:59
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  2. Content Type:Debate

    Novel precision oncology trial designs, such as basket and umbrella trials, are designed to test new anticancer agents in more effective and affordable ways. However, they present some ethical concerns referre...
    Authors:Karolina Strzebonska and Marcin Waligora
    Citation:BMC Medical Ethics 2019 20:58
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  3. Content Type:Research Article

    Biobanking is a relatively new concept in Egypt. Building a good relationship with different stakeholders is essential for the social sustainability of biobanks. To establish this relationship, it is necessary...
    Authors:Ahmed S. Abdelhafiz, Eman A. Sultan, Hany H. Ziady, Ebtesam Ahmed, Walaa A. Khairy, Douaa M. Sayed, Rana Zaki, Merhan A. Fouda and Rania M. Labib
    Citation:BMC Medical Ethics 2019 20:57
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  4. Content Type:Research Article

    Information on the factors influencing parents’ decision-making process following a lethal, life-limiting or severely debilitating prenatal diagnosis remains deficient. A comprehensive systematic review and me...
    Authors:Claire Blakeley, Debbie M. Smith, Edward D. Johnstone and Anja Wittkowski
    Citation:BMC Medical Ethics 2019 20:56
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  6. Content Type:Research Article

    Rare Disease research has seen tremendous advancements over the last decades, with the development of new technologies, various global collaborative efforts and improved data sharing. To maximize the impact of...
    Authors:Minh Thu Nguyen, Jack Goldblatt, Rosario Isasi, Marlene Jagut, Anneliene Hechtelt Jonker, Petra Kaufmann, Laetitia Ouillade, Fruszina Molnar-Gabor, Mahsa Shabani, Eric Sid, Anne Marie Tassé, Durhane Wong-Rieger and Bartha Maria Knoppers
    Citation:BMC Medical Ethics 2019 20:55
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  8. Content Type:Research Article

    The field of bioethics has evolved over the past half-century, incorporating new domains of inquiry that signal developments in health research, clinical practice, public health in its broadest sense and more ...
    Authors:Gail Robson, Nathan Gibson, Alison Thompson, Solomon Benatar and Avram Denburg
    Citation:BMC Medical Ethics 2019 20:53
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  10. Content Type:Research Article

    Engaging communities in community-based health research is increasingly being adopted in low- and middle-income countries. The use of community advisory boards (CABs) is one method of practicing community invo...
    Authors:Charmaine Khudzie Mlambo, Eva Vernooij, Roos Geut, Eliane Vrolings, Buyisile Shongwe, Saima Jiwan, Yvette Fleming and Gavin Khumalo
    Citation:BMC Medical Ethics 2019 20:50
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  11. Content Type:Research Article

    An ethics reflection group (ERG) is one of a range of ethics support services developed to better handle ethical challenges in healthcare. The aim of this article is to evaluate the implementation process of i...
    Authors:Henriette Bruun, Reidar Pedersen, Elsebeth Stenager, Christian Backer Mogensen and Lotte Huniche
    Citation:BMC Medical Ethics 2019 20:49
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  12. Content Type:Debate

    Evaluating clinical ethics support services (CESS) has been hailed as important research task. At the same time, there is considerable debate about how to evaluate CESS appropriately. The criticism, which has ...
    Authors:Jan Schildmann, Stephan Nadolny, Joschka Haltaufderheide, Marjolein Gysels, Jochen Vollmann and Claudia Bausewein
    Citation:BMC Medical Ethics 2019 20:48
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  13. Content Type:Research Article

    This article discusses our reflections on ethical and methodological challenges when conducting separate interviews with individuals in dyads in the uMkhanyakude district, South Africa. Our work is embedded in...
    Authors:Dumile Gumede, Nothando B. Ngwenya, Stella Namukwaya, Sarah Bernays and Janet Seeley
    Citation:BMC Medical Ethics 2019 20:47
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  14. Content Type:Research Article

    The non-identity problem arises when our actions in the present could change which people will exist in the future, for better or worse. Is it morally better to improve the lives of specific future people, as ...
    Authors:Keyur Doolabh, Lucius Caviola, Julian Savulescu, Michael J. Selgelid and Dominic Wilkinson
    Citation:BMC Medical Ethics 2019 20:46
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  15. Content Type:Research Article

    There is a need for empirically based research on social and ethical challenges related to informed consent processes, particularly in studies focusing on adolescent sexual and reproductive health. In a pilot ...
    Authors:Joseph Mumba Zulu, Ingvild Fossgard Sandøy, Karen Marie Moland, Patrick Musonda, Ecloss Munsaka and Astrid Blystad
    Citation:BMC Medical Ethics 2019 20:45
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  17. Content Type:Research Article

    Emerging genomic technologies promise more efficient infectious disease control. Whole genome sequencing (WGS) is increasingly being used in tuberculosis (TB) diagnosis, surveillance, and epidemiology. However...
    Authors:Carly Jackson, Jennifer L. Gardy, Hedieh C. Shadiloo and Diego S. Silva
    Citation:BMC Medical Ethics 2019 20:43
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  18. Content Type:Research Article

    This paper explores ethical concerns arising in healthcare integration. We argue that integration is necessary imperative for meeting contemporary and future healthcare challenges, a far stronger evidence base...
    Authors:Alex McKeown, Charlotte Cliffe, Arun Arora and Ann Griffin
    Citation:BMC Medical Ethics 2019 20:42
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  19. Content Type:Research Article

    International research guidance has shifted towards an increasingly proactive inclusion of children and adolescents in health research in recognition of the need for more evidence-based treatment. Strong calls...
    Authors:Vicki Marsh, Nancy Mwangome, Irene Jao, Katharine Wright, Sassy Molyneux and Alun Davies
    Citation:BMC Medical Ethics 2019 20:41
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  20. Content Type:Research Article

    Armed conflict in Darfur, west Sudan since 2003 has led to the influx of about 100 international humanitarian UN and non-governmental organizations to help the affected population. Many of their humanitarian i...
    Authors:Ghaiath Hussein and Khalifa Elmusharaf
    Citation:BMC Medical Ethics 2019 20:40
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  21. Content Type:Research Article

    Ethical approval (EA) must be obtained before medical research can start. We describe the differences in EA for an pseudonymous, non-interventional, observational European study.
    Authors:Dylan W. de Lange, Bertrand Guidet, Finn H. Andersen, Antonio Artigas, Guidio Bertolini, Rui Moreno, Steffen Christensen, Maurizio Cecconi, Christina Agvald-Ohman, Primoz Gradisek, Christian Jung, Brian J. Marsh, Sandra Oeyen, Bernardo Bollen Pinto, Wojciech Szczeklik, Ximena Watson…
    Citation:BMC Medical Ethics 2019 20:39
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  22. Content Type:Research Article

    The exportation of unethical practices to low- and middle-income countries (“Ethics Dumping”) has been conceived as a prevalent practice which needs to be examined more closely. Such a practice might point tow...
    Authors:Novoa-Heckel Germán and Bernabe Rosemarie
    Citation:BMC Medical Ethics 2019 20:38
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  27. Content Type:Research Article

    The work of general practitioners (GPs) is infused by norms from several movements, of which evidence based medicine, patient-centredness, and virtue ethics are some of the most influential. Their precepts are...
    Authors:Linus Johnsson and Lena Nordgren
    Citation:BMC Medical Ethics 2019 20:33
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  28. Content Type:Research Article

    Paediatric research in low-income countries is essential to tackle high childhood mortality. As with all research, consent is an essential part of ethical practice for paediatric studies. Ethics guidelines rec...
    Authors:Helen Mangochi, Kate Gooding, Aisleen Bennett, Michael Parker, Nicola Desmond and Susan Bull
    Citation:BMC Medical Ethics 2019 20:32
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  30. Content Type:Research Article

    During the set-up phase of an international study of genetic influences on outcomes from sepsis, we aimed to characterise potential differences in ethics approval processes and outcomes in participating Europe...
    Authors:Ascanio Tridente, Paul A. H. Holloway, Paula Hutton, Anthony C. Gordon, Gary H. Mills, Geraldine M. Clarke, Jean-Daniel Chiche, Frank Stuber, Christopher Garrard, Charles Hinds and Julian Bion
    Citation:BMC Medical Ethics 2019 20:30
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  31. Content Type:Debate

    Ensuring that countries have adequate research capacities is essential for an effective and efficient response to infectious disease outbreaks. The need for ethical principles and values embodied in internatio...
    Authors:Abha Saxena, Peter Horby, John Amuasi, Nic Aagaard, Johannes Köhler, Ehsan Shamsi Gooshki, Emmanuelle Denis, Andreas A. Reis and Raffaella Ravinetto
    Citation:BMC Medical Ethics 2019 20:29
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  32. Content Type:Research Article

    Substituted judgment assumes adequate knowledge of patient’s mind-set. However, surrogates’ prediction of individual healthcare decisions is often inadequate and may be based on shared background rather than p...
    Authors:Muhammad M. Hammami, Kafa Abuhdeeb, Muhammad B. Hammami, Sophia J. S. De Padua and Areej Al-Balkhi
    Citation:BMC Medical Ethics 2019 20:28
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  33. Content Type:Debate

    There is unanimous agreement regarding the need to ethically conduct research for improving therapy for patients admitted to hospital with acute conditions, including in emergency obstetric care. We present a ...
    Authors:Dan K. Kaye, Gershom Chongwe and Nelson K. Sewankambo
    Citation:BMC Medical Ethics 2019 20:27
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  34. Content Type:Research Article

    Professional ethics is one of the important topics, which includes various rights such as respecting the patient’s right to choose (autonomy), being useful (beneficence), being harmless (non- maleficence), and...
    Authors:Haleh Jafari, Alireza Khatony, Alireza Abdi and Faranak Jafari
    Citation:BMC Medical Ethics 2019 20:26
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  35. Content Type:Research Article

    Endeavors have been made to found and incorporate ethical values in most aspects of healthcare, including health technology assessment. Health technologies and their assessment are value-laden and could trigge...
    Authors:Amal Matar, Mats G. Hansson and Anna T. Höglund
    Citation:BMC Medical Ethics 2019 20:25
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  36. Content Type:Correction

    It has come to our attention that in the original article [1] information regarding dates was omitted. The data in this study were obtained in Switzerland four years before the entering into force of the new S...
    Authors:Flora Colledge, Sophie De Massougnes and Bernice Elger
    Citation:BMC Medical Ethics 2019 20:24
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    The original article was published in BMC Medical Ethics 2018 19:93
  37. Content Type:Research Article

    Family members do not have an official position in the practice of euthanasia and physician assisted suicide (EAS) in the Netherlands according to statutory regulations and related guidelines. However, recent ...
    Authors:Bernadette Roest, Margo Trappenburg and Carlo Leget
    Citation:BMC Medical Ethics 2019 20:23
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  38. Content Type:Research Article

    Medical assistance in dying (MAID) was legalized in Canada in 2016. As of July 2017, approximately 2149 patients have accessed MAID. There remains no national-level data on the perspectives of future physician...
    Authors:James Falconer, Félix Couture, Koray K. Demir, Michael Lang, Zachary Shefman and Mark Woo
    Citation:BMC Medical Ethics 2019 20:22
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  39. Content Type:Research Article

    Large-scale linkage of international clinical datasets could lead to unique insights into disease aetiology and facilitate treatment evaluation and drug development. Hereto, multi-stakeholder consortia are cur...
    Authors:Shona Kalkman, Menno Mostert, Christoph Gerlinger, Johannes J. M. van Delden and Ghislaine J. M. W. van Thiel
    Citation:BMC Medical Ethics 2019 20:21
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  40. Content Type:Debate

    End-of-life disputes in Ontario are currently overwhelmingly assessed through the singular lens of patient autonomy. The current dispute resolution mechanism(s) does not adequately consider evidence-based medi...
    Authors:Joshua T. Landry, Rakesh Patel, David Neilipovitz, Kwadwo Kyeremanteng and Gianni D’Egidio
    Citation:BMC Medical Ethics 2019 20:20
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  41. Content Type:Research Article

    The doctor-patient relationship has evolved to respect “the autonomy and patients’ rights”. One of the cornerstones in such autonomy is the opportunity for patients to draw living wills, also known as advance ...
    Authors:Sidonie Hubert, Sarah Wainschtein, Albane Hugues, Caroline Schimpf, Thècle Degroote, Kelly Tiercelet, Marc Tran, Cédric Bruel and Francois Philippart
    Citation:BMC Medical Ethics 2019 20:19
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  42. Content Type:Research Article

    The rapid expansion of research on Brain-Computer Interfaces (BCIs) is not only due to the promising solutions offered for persons with physical impairments. There is also a heightened need for understanding B...
    Authors:Johannes Kögel, Jennifer R. Schmid, Ralf J. Jox and Orsolya Friedrich
    Citation:BMC Medical Ethics 2019 20:18
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  43. Content Type:Debate

    In December 2017, Law 219/2017, ‘Provisions for informed consent and advance directives’, was approved in Italy. The law is the culmination of a year-long process and the subject of heated debate throughout It...
    Authors:Marco Di Paolo, Federica Gori, Luigi Papi and Emanuela Turillazzi
    Citation:BMC Medical Ethics 2019 20:17
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  44. Content Type:Debate

    Even after several decades of human drug development, there remains an absence of published, substantial, comprehensive data to validate the use of animals in preclinical drug testing, and to point to their pr...
    Authors:Jarrod Bailey and Michael Balls
    Citation:BMC Medical Ethics 2019 20:16
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  45. Content Type:Research Article

    Physicians play a substantial role in facilitating communication regarding life-supporting treatment decision-making including do-not-resuscitate (DNR) in the intensive care units (ICU). Physician-related fact...
    Authors:Kuan-Han Lin, Shu-Chien Huang, Chih-Hsien Wang, Chau-Chung, Tzong-Shinn Chu and Yen-Yuan Chen
    Citation:BMC Medical Ethics 2019 20:15
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  47. Content Type:Research Article

    Medicine has undergone substantial changes in the way medical dilemmas are being dealt with. Here we explore the attitude of Israeli physicians to two debatable dilemmas: disclosing the full truth to patients ...
    Authors:Baruch Velan, Arnona Ziv, Giora Kaplan, Carmit Rubin, Yaron Connelly, Tami Karni and Orna Tal
    Citation:BMC Medical Ethics 2019 20:13
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  48. Content Type:Research Article

    In Victoria, Australia, the law regulating abortion was reformed in 2008, and a clause (‘Section 8’) was introduced requiring doctors with a conscientious objection to abortion to refer women to another provid...
    Authors:Louise Anne Keogh, Lynn Gillam, Marie Bismark, Kathleen McNamee, Amy Webster, Christine Bayly and Danielle Newton
    Citation:BMC Medical Ethics 2019 20:11
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  49. Content Type:Research Article

    The consent and community engagement process for research with Indigenous communities is rarely evaluated. Research protocols are not always collaborative, inclusive or culturally respectful. If participants d...
    Authors:Emily FM Fitzpatrick, Gaynor Macdonald, Alexandra LC Martiniuk, June Oscar, Heather D’Antoine, Maureen Carter, Tom Lawford and Elizabeth J Elliott
    Citation:BMC Medical Ethics 2019 20:12
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