8000 days with Duchenne Muscular dystrophy

The diagnosis not only changes the family’s life abruptly but also permanently. Their daily life is marked by worries about dealing with the beloved child, adapting to society, his further development, for instance regarding his school career, and many others. By the age of about 8, the boys affected by the muscular weakness are confined to a wheelchair. The Deutsche Duchenne Stiftung of the “aktion benni & co e.V.“ association is committed to push research on therapy development and to improve the patients’ life conditions. The foundation’s work also includes informing the public about DMD and implementing social and psychological projects for DMD families. Thanks to donations and gifts, the Deutsche Duchenne Stiftung may enable the future for children and teenagers with the muscular disease.