viernes, 17 de mayo de 2019

#Pledge4RD ahead of the 2019 European elections | EURORDIS - The Voice of Rare Disease Patients in Europe

EURORDIS - The Voice of Rare Disease Patients in Europe

Eurordis, Rare Diseases Europe

The Voice of Rare Disease
Patients in Europe



#Pledge4RD ahead of the 2019 European elections



From 23 to 26 May 2019, citizens across the EU will vote for the Members of the European Parliament (MEPs) they want to represent them for the next five years.
To ensure that the 25 - 30 million people living with a rare disease in Europe and their families are not left behind and achieve their highest potential of health and well-being, we are calling on MEPs to #Pledge4RD.

Ask your MEP to #Pledge4RD

>> Why should your MEP care?
Because rare is common. Many people are affected by a rare disease or know someone who is.
Rare diseases affect 25-30 million people in the EU, nearly 5% of the EU population, or the population of Belgium and the Netherlands combined. This estimate only increases when considering the carers, families and friends who need to support their loved ones.
There are over 6,000 rare diseases. The reality is that most people know somebody that is affected by a rare disease, whether they realise it or not.
Now is the time to call on your returning MEP or a candidate MEP to pledge their support for rare diseases.

>> How can they #Pledge4RD? <<

  1. Download and print the #Pledge4RD sign.
  2. Post their photo on social media using #Pledge4RD #EUelections2019 and tagging @eurordis

The #Pledge4RD to leave no one behind

To ensure that the 25 - 30 million people living with a rare disease in Europe and their families are not left behind and achieve their highest potential of health and well-being, MEPs can #Pledge4RD to support a new political framework that:

Read the full pledge leaflet


MEPs & candidates who have pledged

#Pledge4RD #EUelections2019

We thank MEPs and candidates who have already pledged for rare diseases.

See their pledges below:

Czech Republic
Kateřina KONECNA MEP, GUE/NL
Denmark
Eva BORCHORST MEJNERTZ, Radikale Venstre
Denmark
Christel SCHALDEMOSE MEP, S&D
Denmark
Pernille WEISS, Konservativ
Denmark
Anton EBSEN, Radikale Venstre
Denmark
Rikke LAURITSEN, Socialistisk Folkeparti
Finland
Sirpa PIETIKAÏNEN MEP, EPP
France
Françoise GROSSETÊTE MEP, EPP
Ireland
Brendan SMITH, Fianna Fáil/strong>
Ireland
Sheila NUNAN, Labour
Italy
Mercedes BRESSO MEP, S&D
Italy
Alessandra MUSSOLINI MEP, EP
Italy
Elisabetta GARDINI MEP, EPP
Latvia
Sergejs AKULIČS, Latvijas Attīstībai
Luxembourg
Gary DIDERICH, déi Lénk
Luxembourg
Anne DAEMS, Demokratesch Partei
Luxembourg
Christian KMIOTEK, European Greens
Poland
Marek PLURA MEP, EPP
Romania
Norica NICOLAI MEP, ALDE
Slovenia
Tanja FAJON, MEP, S&D
Slovenia
Igor ŠOLTES MEP, Greens/European Free Alliance
Spain
Juan Ignacio ZOIDO, Partido Popular


 

Page created: 19/04/2019
Page last updated: 16/05/2019

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