Orphanet Journal of Rare Diseases
Strategies for care quality improvement in Cystic Fibrosis
Orphanet Journal of Rare Diseases201813(Suppl 1):26
© The Author(s). 2018
Published: 8 February 2018
Cystic fibrosis (CF) is a “model” of international collaboration for therapeutic research, social science research, development of international guidelines and care management all at once, because of its characteristics: a genetic disease which is progressive, chronic and multisystemic, with a prevailing impairment of the respiratory function, and also a “rare disease”, albeit the most common of “rare diseases” in Caucasian populations.