Strategies for care quality improvement in Cystic Fibrosis

Gilles RaultEmail author and
Pierre Lombrail

Orphanet Journal of Rare Diseases201813(Suppl 1):26

https://doi.org/10.1186/s13023-017-0743-9

Published: 8 February 2018

Cystic fibrosis (CF) is a “model” of international collaboration for therapeutic research, social science research, development of international guidelines and care management all at once, because of its characteristics: a genetic disease which is progressive, chronic and multisystemic, with a prevailing impairment of the respiratory function, and also a “rare disease”, albeit the most common of “rare diseases” in Caucasian populations.