miércoles, 9 de diciembre de 2015

World RARE Disease Day is less than 90 days away, are you ready?

World Rare Disease Day...

...is less than 90 days away! Are you ready to raise awareness for your rare disease?
This year we are hosting a RAREwebinar on December 15, 2015 at 10:00 a.m. Pacific/1:30 p.m. Eastern that will explore ideas to create awareness for your specific rare disease as well as for the entire rare disease community!
Topics include:
  • Hosting your own World Rare Disease Day events
    • Schools
    • Businesses
    • General Community
  • Reaching out to share your story
    • Social Media
    • Print/Media Coverage
  • Advocating in Washington D.C. during Rare Disease Week
… and more!
This 60 minute session has limited space and will fill up fast! Registration is FREE! Register, here
If you have to miss the live event, register anyways, a recording will be sent to you when available. 

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