OUR INITIATIVE NEEDS YOUR HELP!

Sophia was diagnosed with Myrhe syndrome when she was  only 4 years old. Her mother, Eileen, was told at the time that it was an extremely rare syndrome with only 32 cases in the  world. Sophia was the first person to be diagnosed in the UK.

Watch Sophia tell her story For Sophia, connecting with others living with a rare disease is crucial. There are still too many people affected by rare  diseases, who have to cope alone, with no place to  connect or talk about their concerns. HELP THEM BREAK  THE CIRCLE OF ISOLATION HELP US CONNECT THEM USING RARECONNECT Rob from EURORDIS