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04/25/2016 03:25 PM EDT
Related MedlinePlus Page: Rare Diseases
![](https://www.nlm.nih.gov/medlineplus/magazine/issues/spring16/images/Devon.jpg)
Dr. Petra Kaufmann and U.S. Rep. Joseph Crowley, co-chair of the Rare Disease Congressional Caucus, visit the "Beyond the Diagnosis" exhibit at the NIH Clinical Center. They are shown with a painting by artist Tom Hughes of Devon, who has atypical hemolytic uremic syndrome.
Photo courtesy of: Daniel Sone
Photo courtesy of: Daniel Sone
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