Genomics|Update|Non Communicable Diseases ► Ethics, Policy and Law

Genomics|Update|Non Communicable Diseases

Volume 34  Number 3  January 22-29, 2015

Ethics, Policy and Law

Communicating with biobank participants: Preferences for receiving and providing updates to researchers
Mester JL, et al. Cancer Epidemiol Biomarkers Prev 2015 Jan

Confidentiality, informed consent and children's participation in the Saudi biobank governance: a comparative study
Alahmad GH & Dierickx K East Mediterr Health J 2014 Nov;20(11):681-9

Ethical, legal and social implications of incorporating personalized medicine into healthcare
Brothers KB & Rothstein MA Per Med 2015;12(1):43-51

How should the legal framework for the protection of human genomic data be formulated?-Implications from the revision processes of the Act on the Protection of Personal Information (PPI Act)
Yamamoto N, et al. J Hum Genet. 2015 Jan 15. 

The emerging need for family-centric initiatives for obtaining consent in personal genome research
Minari J, et al. Genome Med 2014;6(12):118

Variants of uncertain significance in BRCA: a harbinger of ethical and policy issues to come?
Cheon JY, et al. Genome Med 2014;6(12):121

Deals for genetic data raise issues of privacy, sharing, by John Lauerman and Makiko Kitamura, Bloomberg News, Jan 14