Aortic dissection, the Community - RareConnect

Aortic dissection, the Community - RareConnect

Welcome - Aortic dissection Community

What is Aortic dissection ?

Aortic Dissection is a life threatening rare disease where the inner layer of the aorta (intima) has ruptured and the blood is now also flowing between the inner and outer layer of the aorta (like a double-barrel) and threatens to also make the outer layer rupture.

Source: Patient groups listed below.

Aortic dissection Resources

More members stories

Latest Member Stories

48 year old with some weird symptoms.

by keithwolff published 4 days ago One comment

I will add more later but the basic skinny is that I woke up one morning to a burning sensation in my chest that I thought was my esophagus. Turns ...

More

My second and third chance at life

by Mikemcintire published 4 days ago One comment

The first part of my dissection is best described in a video my wife made for me. Click on the link below. 
https://m.youtube.com/watch?v=RIutDfMd-......

More

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.

• 
  AORTA DISSEKTION FÖRENINGEN SKANDINAVIEN
  
  
  

  Latest Aortic dissection Community Activity

  • Predicting Death in Patients With Acute Type A Aortic Dissectiondocument published 1 day ago 
    show transcript
  • Early and late outcomes of acute type A aortic dissection: analysis of risk factors in 487 consec...document published 1 day ago 
    show transcript
  • Comparison of chronic type A aortic dissection with acute type A dissection of short-term and lon...document published 1 day ago 
    show transcript
  • Aortic Dissection in Patients with Bicuspid Aortic Valves: Clinical and Pathologic Comparison wit...document published 1 day ago 
    show transcript
  • Acute type B aortic dissection: insights from the International Registry of Acute Aortic Dissectiondocument published 1 day ago 
    show transcript
  • My AD. Why it took me over 2 hours to get to the emergency departmentreply published 2 days ago 
    show transcript
  • Shahrezadereply published 7 days ago 
    show transcript
  • Welcome to the Familial Aortic Dissection communityreply published 8 days ago 
    show transcript