EURORDIS TV | www.eurordis.org

EURORDIS TV | www.eurordis.org

EURORDIS TV

Compelling videos from the rare disease community on EURORDIS TV Issues with my tissues: A film following Lara’s journey as she attempts to be the first person with Ehlers-Danlos syndrome to walk the London Marathon. Hear from Lara and other EDS patients Issues with my Tissues A documentary following Lara Bloom's journey attempting to be the first person with Ehlers-Danlos syndrome to walk the 26.2 miles of the London Marathon. Ehlers-Danlos syndrome is explored and explained throughout the film, sharing many families' stories