EURORDIS - The Voice of Rare Disease Patients in Europe

EURORDIS - The Voice of Rare Disease Patients in Europe

WHAT'S NEW AT EURORDIS?

Find out our latest announcements Yann Le Cam appointed Special Advisor to Biopontis Alliance for Rare Diseases Patients and Services We’re aiming to get to 100 specialised social services mapped in 2015 - only 6 to go! read more... Featured Event Commissioner Andriukaitis will give the opening remarks at the EURORDIS 2015 event (24 Feb). Attend in Brussels or tune in online! read more... Member's Corner Attend a ‘How To Identify Rare Disease Patients’ workshop run by Findacure - 30 Jan, London read more... National Plans EUROPLAN National Conferences foster National Plans for Rare Diseases read more... Actions Read article on ‘adaptive pathways’ and how they can help to deliver a flexible approach to bring new drugs to patients read more... International Events The Annual Conference of the European Forum for Good Clinical Practice takes place from 27 - 28 January in Brussels, Belgium read more... RareConnect A social network of Rare Disease Communities led by NORD and EURORDIS in partnership with leading disease-specific patient groups. A transplant changed my life - read the story of Babarain who is living with atypical hemolytic-uremic syndrome To find out more about how you can join RareConnect, contact us.