jueves, 31 de diciembre de 2009

RARE DISEASES: 5th European Conference on Rare Diseases ECRD 2010

Register to the 5th European Conference on Rare Diseases ECRD 2010 in Krakow now!

May 13, 14 & 15
Jagiellonian University - Auditorium Maximum

Programme and registration: www.rare-diseases.eu

The European Conference on Rare Diseases is the unique platform/forum across all rare diseases, across all European countries, bringing together all stakeholders (academics, health care professionals, industry, policy makers, and patients' representatives).
It covers research, development of new treatments, health care, social care, information, public health and support at European, national and regional levels.

It is a biennial event, providing the state-of-the-art of the rare disease environment, monitoring and benchmarking initiatives.

Special rates if you register before 31 January 2010!

The conference will be interpreted in:

Themes of ECRD 2010

-National strategies and plans for rare diseases
-European Reference Networks and Centres of Expertise for Rare Diseases
-Science from the bench to the bed side
-Information and Medical Education
-The European Committee for Rare Diseases
-Policy scenarii for rare diseases
-Rare diseases in Central/Eastern Europe
-Services to patients, families and carers

Fellowship programme
For patient representatives from Eastern countries who can understand English, the organisers are pleased to announce a fellowship programme that will offer:

Registration fee exemption
Travel (economy class)
Two nights accommodation
To apply to the fellowship programme download the application form and send it by email to :
or by fax to + 33 1 56 53 52 15

If you wish information about the conference:
visit the website www.rare-diseases.eu

or contact the secretariat (English only):

I you wish to organise your trip or to visit Krakow and its region after or before the conference, contact the local event organiser office:

Grupa A05
Grupa A-05 Sp. z o.o.
31-101 Krakow, Poland
Pl. Na Groblach 14/2
P. +48 12 429 62 23
F. +48 12 429 62 87
E: a05@a05.pl

Call for abstracts!

You are invited to submit an abstract for the European Conference on Rare Diseases to be presented during the poster session. Posters will be selected by the programme committee.
We are calling for abstracts on "Services to Patients, Families and Carers".

The basic text of your abstracts should not exceed 300 words.
Use the following website: www.rare-diseases.eu/2010/On-line-submission-form

Deadline for Abstract Submission extended to : 31 January 2010

Please also note that your abstract will be included in the scientific programme, if you register before 31 January 2010.

Programme Committee
Cochairs of the programme committee:

Torben Gronnebaek Rare Disorders Denmark
Prof Josep Torrent I Farnell Fundacio Dr. Robert
Other members

Mrs Dorica Dan - Romanian Alliance of Rare Diseases Organisations
Mr Pawel Wojtowicz - Cystic Fibrosis Poland
Mr Rainald von Gizycki - Retina Europe
Mr John Dart - Debra United Kingdom
Mrs Lia van Ginneken - European Myeloma Platform
Dr Ségolène Aymé - Orphanet, RDTF
Prof Tomasz Grodzicki - Faculty of Medicine Krakow
Dr B. Dembowska-Baginska - COMP member, Poland
Dr Frits Lekkerkerker - Dutch Steering Committee on Orphan Drugs WGM
Dr Kerstin Westermark - COMP Chair, EMEA
Mr Jakub Adamski - Ministry of Health, Poland

Contact us!
The project leader is Yann Le Cam, Eurordis CEO.

Please contact the project coordination:
François Houÿez
Eurordis - Plateforme Maladies Rares - 102 rue Didot - 75014 Paris, France
Tel: + 331 56 53 52 18
email: kasia.peala@eurordis.org

The Polka team

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