Last Posted: Feb 12, 2020
- Investigational Hemophilia A Gene Therapy Shows Sustained Benefit
J Abbasi, JAMA, February 11, 2020 - Establishing the Prevalence and Prevalence at Birth of Hemophilia in Males: A Meta-analytic Approach Using National Registries.
Iorio Alfonso et al. Annals of internal medicine 2019 Sep - Mothers' intentions and behaviours regarding providing risk communication to their daughters about their possibility of being haemophilia carriers: A qualitative study.
Fujii Tomie et al. Haemophilia : the official journal of the World Federation of Hemophilia 2019 Oct - Was the Human Genome Project a dud?
EF Torrey, Dallas Morning News, October 13, 2019 - Establishment of diagnostic facilities for autosomal recessive bleeding disorders in Pakistan.
Naz Arshi et al. Blood advances 2018 2(Suppl 1) 35-38 - Management of haemophilia carriers around the time of their delivery: Phenotypic variation requiring customization of management.
Girgis M R et al. Haemophilia : the official journal of the World Federation of Hemophilia 2018 24(3) e128-e129 - Gene therapy for hemophilia: Progress to date and challenges moving forward.
Gollomp Kandace L et al. Transfusion and apheresis science : official journal of the World Apheresis Association : official journal of the European Society for Haemapheresis 2019 Aug - The $6 Million Drug Claim- New treatments for rare diseases are changing the lives of patients, but the price can reach millions of dollars for a single person.
K Thomas et al, NY Times, August 25, 2019 - Off to College Toolkit
Hemophilia Federation of America, 2019 - Bleeding Disorders in Women: Free Materials
CDC, 2019
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