Building a Movement: How the Rare Disease Community Seeks Change

Building a Movement: How the Rare Disease Community Seeks Change

This Is What Makes Me Rare

Feb 24, 2020 09:00 am | Tré LaRosa

It probably won’t come as a shock if I say that growing up with cystic fibrosis is confusing for one’s identity. Cystic fibrosis requires a huge time commitment and affects most areas of our lives. We can choose to hide it, which probably isn’t the best idea, because then we don’t develop the best skills […] The post This Is What Makes Me Rare appeared first on Cystic Fibrosis News Today.

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