CDC’s 2014-2017 Community Counts Registry Report on Males with Hemophilia is now available.

The Report represents baseline data from 9,173 males with hemophilia A or B who were enrolled in Community Counts and received care at HTCs in the United States (US) between December 2013 and December 2017. Key findings from the report are:

The male participants who enrolled in the Registry from 2014–2017 account for 44% of the males with hemophilia who were treated at HTCs during this timeframe.
Seventy-nine percent of the males enrolled in the Registry had hemophilia A and 21% had hemophilia B.
Fifty-nine percent of males with hemophilia A and 39% of males with hemophilia B had severe hemophilia.
Twenty percent of the males with hemophilia (2-19 years old) were obese, a higher percentage than males in the same age group (18%) who were examined in the National Health and Nutrition Examination Survey (2015–2016).
Fifty-eight percent of the males with hemophilia A and 53% of patients with hemophilia B, age 25 years of age or older, had an education beyond a high school diploma.

For both hemophilia types:

Hepatitis A vaccination status was unknown for about 22% of the males born in 1985 or later and for about 32% of males born before 1985.
Hepatitis B vaccination status was unknown for about 16% of the males born in 1985 or later and for about 30% of males born before 1985.

View the full Registry Report on Males with Hemophilia 2014-2017 report here.