Super Powers and Keynote Inspiration at the 2018 Summit

When her daughter Evie was born with a rare condition, award-winning photographer Rachel Callander used the power of language to see her potential, her abilities, and her beauty -- to focus on Evie’s “super powers.”
This was a powerful shift for her family and ultimately resulted in her life-affirming work, the Super Power Baby Project. Since losing her daughter Evie, Rachel has traveled throughout New Zealand meeting ordinary families made extraordinary through their children. As a result, her photographic art book features stunning photos of children born with rare conditions and offers a fresh perspective and a strong message: rare diseases bring challenges and grief but also much to be celebrated.

Rachel is a captivating TEDx presenter, speaker, trainer and artist who travels the world speaking about the need to communicate using open-hearted language, especially at diagnosis. She teaches health professionals that the first words used at diagnosis critically shape how a parent perceives the future of their child and family. We’re so grateful to have Rachel as a keynote speaker at the RARE Patient Advocacy Summit in Irvine, California on October 3-4th . Don’t miss the chance to be inspired – register today. With Hope, Global Genes PS – Now is the time to save! Early bird pricing ends on May 31st.

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Nominate a RARE Champion of Hope Nominate your RARE Champion of Hope by May 31st. All awardees will be honored and recognized during the Summit at the RARE Champion of Hope Awards celebration.

Book Your Stay              Rooms at the host hotel, Hotel Irvine, will fill fast. Don't miss out! Reserve your stay on location for the RARE Patient Advocacy Summit soon.

Become an Exhibitor Only 10 exhibitor spaces remain! Come show off what your organization has to offer to 800+ Summit attendees. Register to be an exhibitor now!

Global Genes is a leading rare disease patient advocacy organization whose purpose is to connect, empower, and inspire the rare disease community. Global Genes®  28 Argonaut, Suite 150 Aliso Viejo, CA 92656  globalgenes.org | Tax ID: 26-3331487 © Global Genes 2018