Study reveals gaps in follow-up care after concussion
Being discharged from a hospital trauma center after receiving treatment for a traumatic brain injury (TBI) does not necessarily mean that a patient has fully recovered. TBI can lead to long-lasting physical and cognitive symptoms, but a new study in JAMA Network Open suggests that many patients may not be receiving follow-up care.
Patients in the Transforming Research and Clinical Knowledge in Traumatic Brain Injury (TRACK-TBI(link is external)) initiative, a large, long-term, NIH-funded study of patients who are treated at the emergency room for mild TBI or concussion, were surveyed about their care after hospital discharge. Follow-up care in this study referred to receiving TBI-related educational materials at discharge, a call from the hospital within two weeks after release, seeing a healthcare provider within two weeks, or seeing a healthcare provider within three months.
According to the findings, 44 percent of the 831 patients who completed questionnaires 2 weeks and 3 months after sustaining TBI reported seeing a doctor or other provider within three months. Of those patients, 15 percent visited a clinic that specialized in head injury. Approximately half of the patients saw a general practitioner and close to a third reported seeing more than one type of doctor.
Additionally, among the 279 patients with three or more moderate-to-severe post-concussive symptoms, 41 percent had not had a follow-up visit at three months after discharge. Approximately half of the patients were discharged without TBI educational materials.
Rates and components of follow-up care after TBI varied widely from institution to institution, even among patients with the same initial degree of injury.
Assessment of follow-up care after emergency department presentation for mild traumatic brain injury and concussion: Results from the TRACK-TBI study. JAMA Network Open.(link is external)
Walter Koroshetz, M.D., Director, National Institute of Neurological Disorders and Stroke, and Patrick Bellgowan, Ph.D., Program Director, National Institute of Neurological Disorders and Stroke, are available to comment on this study
The NINDS is the nation’s leading funder of research on the brain and nervous system. The mission of NINDS is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease.
About the National Institutes of Health (NIH): NIH, the nation's medical research agency, includes 27 Institutes and Centers and is a component of the U.S. Department of Health and Human Services. NIH is the primary federal agency conducting and supporting basic, clinical, and translational medical research, and is investigating the causes, treatments, and cures for both common and rare diseases. For more information about NIH and its programs, visit www.nih.gov.
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