| European Reference Networks: Video testimonials of Elisa, Paula, Jasper and Daniel now online! |
In 2017 over 900 highly-specialised medical teams from all over Europe joined forces to tackle rare or complex diseases within 24 European Reference Networks (ERNs). The ERNs are a ray of hope for many patients, their families and their doctors. In four new videos, patients explain how the networks will help them.
 | Elisa is a young Italian woman who suffers from a rare bone disorder. European Reference Networks allow doctors to share their knowledge, data and resources, to help diagnose and treat people like Elisa. |
 | Paula, a girl from Barcelona, is an organ recipient. Paediatric transplantations require a complex, life-long follow-up. Pooling and exchanging expertise within ERNs can help these children get the best pre and post-operative care. |
 | From the Netherlands, Jasper suffers from a genetic form of heart disease. He is being helped by a multidisciplinary medical team in Amsterdam involved in the ERN on diseases of the heart. This collaboration allows the doctors and researchers to better understand his case from different perspectives. |
 | Daniel represents patients in the ERN dealing with rare kidney diseases. His story illustrates the importance of listening to patients to improve care. |
 | A longer video is also available, presenting the full story of the European Reference Networks from the perspective of doctors, patients and the European Health Commissioner, Vytenis Andriukaitis. |
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