Balancing the Local and the Universal in Maintaining Ethical Access to a Genomics Biobank

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Last Posted: Jun 30, 2017

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• Balancing the Local and the Universal in Maintaining Ethical Access to a Genomics Biobank  
  C Heeney et al, BioRXiv, June 2017
• Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era.  
  Chalmers Don et al. BMC medical ethics 2016 Jul (1) 39
• Young people's awareness on biobanking and DNA profiling: results of a questionnaire administered to Italian university students.  
  Tozzo Pamela et al. Life sciences, society and policy 2017 Dec 13(1) 9
• The use of electronic health records for psychiatric phenotyping and genomics.  
  Smoller Jordan W et al. American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics 2017 May
• Assessment of knowledge about biobanking among healthcare students and their willingness to donate biospecimens.  
  Merdad Leena et al. BMC medical ethics 2017 May 18(1) 32
• Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.  
  Sanderson Saskia C et al. American journal of human genetics 2017 Mar 100(3) 414-427
• Community recommendations on biobank governance: Results from a deliberative community engagement in California.  
  Dry Sarah M et al. PloS one 2017 12(2) e0172582
• Engaging a state: Facebook comments on a large population biobank.  
  Platt Tevah et al. Journal of community genetics 2017 Apr
• A qualitative study of adolescents' understanding of biobanks and their attitudes toward participation, re-contact, and data sharing.  
  Murad Andrea M et al. American journal of medical genetics. Part A 2017 Apr 173(4) 930-937
• Genetic Testing and Molecular Biomarkers  
  Genetic Testing & Biomarkers, March 2017
• "Still Rather Hazy at Present": Citizens' and Physicians' Views on Returning Results from Biobank Research Using Broad Consent.  
  Barazzetti Gaia et al. Genetic testing and molecular biomarkers 2017 Mar 21(3) 159-165
• Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries.  
  de Vries Jantina et al. BMC medical ethics 2017 Feb 18(1) 8
• Whose Biobank? Should Biobanks Serve Research Interests or the Needs for Personalized Medicine? Analysis of the Hungarian Law.  
  Sándor Judit et al. Genetic testing and molecular biomarkers 2017 Jan
• Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts.  
  Kaye Jane et al. Biopreservation and biobanking 2016 Jun 14(3) 201-6
• Lay Attitudes Toward Trust, Uncertainty, and the Return of Pediatric Research Results in Biobanking.  
  Lynch John et al. AJOB empirical bioethics 2016 7(3) 160-166
• Access policies in biobank research: what criteria do they include and how publicly available are they? A cross-sectional study.  
  Langhof Holger et al. European journal of human genetics : EJHG 2016 Dec

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