Ethics, Policy & Law

Ethics, Policy & Law

Contrasting the ethical perspectives of biospecimen research among individuals with familial risk for hereditary cancer and biomedical researchers: Implications for researcher training 
Quinn GP, et al. Genet Test Mol Biomarkers 2014 Apr

Ethical management in the constitution of a European database for leukodystrophies rare diseases 
Duchange N, et al. Eur J Paediatr Neurol 2014 Apr

The FDA and 23andMe: Violating the first amendment or protecting the rights of consumers?
Baudhuin L, Clin Chem. 2014 May 1

Is FDA's crackdown on direct-to-consumer genetic testing a violation of the first amendment? Digital Journal, May 5

Return of genomic results to research participants: The floor, the ceiling, and the choices in between
Gail P. Jarvik et al. Am J Human Genetics, May 8, 2014

Big data: Seizing opportunities, preserving values,  [PDF 1.08 MB] United States White House Report, May 2014