Last Posted: Jun 14, 2018
- Community Counts
Explore health issues, medical complications, and causes of death that affect people with bleeding disorders who receive care at U.S. Hemophilia Treatment Centers - Basics About Hemophilia
- Gene therapy for monogenic liver diseases: clinical successes, current challenges and future prospects.
Baruteau Julien et al. Journal of inherited metabolic disease 2017 Jul 40(4) 497-517 - FDA plans to speed path to approval for some gene therapies, starting with hemophilia
I. Swetlitz, StatNews, May 22, 2018 - Preconception Carrier Screening by Genome Sequencing: Results from the Clinical Laboratory.
Punj Sumit et al. American journal of human genetics 2018 May - Hemophilia groups warned of 5 deaths among patients taking Roche’s big new blockbuster Hemlibra
J Carroll, Endpoints News, Mar 28, 2018 - What is an inhibitor?
All people with hemophilia and VWD type 3 are at risk for developing an inhibitor ? an antibody ? to treatment used to stop or to prevent a bleeding episode: Anthony's story. - Hemophilia Drug With Big Price Tag May Be Economical In the Long Run
S Collins, Feb 2018 - Chris Bombardier: Reaching New Heights
He is the first person with hemophilia to summit Mount Everest, Hemaware, Feb 2018 - Factor VIII Inhibitors: Generating a National Blueprint for Future Research
NHLBI Conference, May 15-18, 2018
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