The Lullaby Trust-led initiative identifies global priorities for tackling Sudden Unexpected Death in Infancy
Pediatrics, the journal of the American Academy of Pediatrics, today published a paper from The Lullaby Trust and partner international organizations, which sets out new global priorities for tackling Sudden Unexpected Death in Infancy (SUDI).
The paper, titled Research Priorities in Sudden Unexpected Infant Death: An International Consensus, highlights the charity’s pioneering ‘Global Action and Prioritization of Sudden infant death (GAPS)’ project, run in collaboration with the International Society for the Prevention of Perinatal and Infant Death (ISPID), Red Nose (formerly SIDS and Kids) in Australia and the American SIDS Institute.
The project is the first of its kind to bring together both professionals and bereaved family members from 25 different countries to achieve consensus on the top ten SUDI research priorities. These priorities aim to focus the efforts of the SUDI research community and ultimately put an end to sudden unexpected deaths worldwide, by identifying the cause, which still eludes researchers.
In the UK alone, some 230 babies die suddenly and unexpectedly each year at a rate of 0.30 deaths per 1,000 live births. Since the launch of the ground-breaking ‘Back to Sleep’ campaign in England and Wales in 1991, the number of sudden infant deaths has fallen by 85%, and in 2016 ONS reported that figures had reached their lowest ever.
Francine Bates, Chief Executive of The Lullaby Trust and co-author of the paper says:
The charity has developed a new research strategy in response to the GAPS findings, and as well as urging researchers to drive the priorities forward, is calling on donors and research funders to help them beat sudden infant death forever.
Ms. Bates added:
The ten international research priorities for tackling SUDI are:
- Studying mechanisms leading to death and how they interact with environmental risk factors.
- Enabling best practice processes and systematic data collection for accurate classification of SUDI deaths to inform research and prevention.
- Developing and evaluating new ways to make safe sleep campaigns more effective.
- Understanding to what extent social and cultural factors affect parental choice in sleep practices and responses to risk reduction campaigns.
- Identifying specific biomarkers to assist pathologists in determining the cause of death.
- Understanding the role of genetic factors in SUDI risk.
- Understanding what mechanisms underlie SUDI risk at different ages.
- Conducting further research on the role of abnormal or immature brain anatomy and physiology.
- Better understanding of the practice of sharing any sleep surface with an infant, notably how it interacts with other factors to make it more or less risky.
- Identifying what factors are associated with SUDI where all aspects of recommended risk reduction have been followed.
Dr Alexis Willett one of the lead authors of the paper said:
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