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BioEdge: Dust-up over a child’s right to know genetic origins | BioEdge | Sunday, June 11, 2017 |

BioEdge: Dust-up over a child’s right to know genetic origins

| BioEdge | Sunday, June 11, 2017 |

Dust-up over a child’s right to know genetic origins
University of Ghent bioethicist Guido Pennings recently published an article in BioNews with the provocative title “Donor children do not benefit from being told about their conception”. This has kindled a heated debate from other experts in the field. From a sociological perspective, Eric Blyth and three other colleagues contend that Pennings’s comments “fall short of the academic rigour readers might have reasonably expected”.

They contend that “there is reliable evidence that the earlier donor-conceived children learn about the nature of their conception, the more favourable the outcomes both for the individual's identity formation and for family relationships. Evidence also reports that discovering one's donor conception later in life and/or in unplanned ways can result, for some, in long-term psychological distress and impair inter-familial and inter-personal relationships.”

From a bioethical point of view, Vardit Ravitsky and three other Canadian bioethicists argue that concealing genetic origins is indefensible. It “deprives donor-conceived people of the liberty to choose what meaning they assign to the genetic components of their identity and relationships, a choice experienced and taken for granted by most others in society.”

This does not necessarily mean that “all or most donor-conceived people will necessarily find their genetic origins of great importance, but rather that they are entitled to make that determination for themselves.”

Professor Ravitsky et al argue that the right to know one’s genetic origins is a human right. It is based on “people's fundamental interest in having access to information that may be crucial to their identity, relationships and health – an interest well-recognised in adoption law ...

“Respect for persons is central in ethics and requires clinics and governments to make it possible for people to know the truth about their origins.”

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Sunday, June 11, 2017

We may have over-egged today’s newsletter with stories about surrogacy, but they all appeared this week with a common theme: what about the mothers? The accepted wisdom is that most mothers are well compensated and give up the child happily.
Not always.
Take the case in England of a surrogate mother who has just been jailed for 22 weeks for stalking a judge and a court welfare officer. The terrified family court judge had awarded the child she bore to the commissioning gay couple even though Lian Harris had changed her mind and wanted to keep it.
Ms Harris snapped.
Over a year she harassed the judge, protested outside the house of politicians and lawyers, unfurled a banner on Westminister Cathedral saying “Family courts do evil”, attempted to fasten herself to the second-floor balcony of the social worker’s home, and tried to organised harassment on Facebook, amongst other stunts.
Not a happy camper.
Ms Harris is said to be an exceptional case. But how do we know? Where are the longitudinal studies to prove that surrogate mothers live happily ever after once they surrender the child they carried for nine months?

Michael Cook

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BioEdge: Dust-up over a child’s right to know genetic origins

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