lunes, 2 de febrero de 2015

DS-Connect™: The Down Syndrome Registry

DS-Connect™: The Down Syndrome Registry

DS-Connect®: The Down Syndrome Registry

“The new registry provides an important resource to individuals with Down syndrome and their families,” said Yvonne T. Maddox, former deputy director of the NIH’sEunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), which is funding the registry.  “The registry links those seeking volunteers for their research studies with those who most stand to benefit from the research.”

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