Being seen: why authentic representation matters in rare disease care

https://rarerevolutionmagazine.com/being-seen-why-authentic-representation-matters-in-rare-disease-care/ Content developed and funded by Chiesi UK Beyond the power of written communication, Dr Kamran Iqbal, Chiesi UK’s head of medical affairs and patient advocacy for global rare diseases, argues that the visibility of visual imagery is also a fundamental aspect of patient-centred care and health equity. In this Q&A, we explore the origins of the True Faces of Rare, a Chiesi UK initiative, and track its evolution from pledges to tangible action, and discuss the collective effort required to reshape visual representation across healthcare and policy Contact Chiesi for more information here: https://www.chiesi.uk.com/contacts https://www.chiesi.uk.com/contacts Content developed and funded by Chiesi UK UK-RD-2600104 | September 2026