RARE Round-up - keeping you up-to-date

https://editions.rarerevolutionmagazine.com/html5/reader/production/default.aspx?pubname=&edid=e0508b93-1cde-4785-b9ae-c36724bde55a&pnum=68 Beyond the facial port‑wine birthmark, Sturge‑Weber syndrome (SWS) represents a complex ongoing journey of resilience. While the skin is often the first visible indicator, the reality is much more: medical uncertainty, seizures and societal stigma. Read more from Julia Terrell, director of community relations at The Sturge-Weber Foundation