August Is SMA Awareness Month by CheckRare Staff| Published on: Aug 1, 2026 ++++ + (videos)

August Is SMA Awareness Month by CheckRare Staff| Published on: Aug 1, 2026 August is SMA Awareness Month, a time dedicated to increasing understanding of spinal muscular atrophy (SMA) and supporting the individuals and families impacted by this rare genetic neuromuscular condition. SMA affects the motor neurons, causing progressive muscle weakness and loss of movement. Most SMA types are caused by mutations in the SMN1 gene, while extra copies of the SMN2 gene modify the severity of disease. Early diagnosis and ongoing specialized care can make a significant difference in patient outcomes. https://checkrare.com/august-is-sma-awareness-month/ Oral Deucrictibant for On-Demand Treatment of Hereditary Angioedema Attacks by Madaline Spencer| Published on: Jun 25, 2026 https://checkrare.com/oral-deucrictibant-for-on-demand-treatment-of-hereditary-angioedema-attacks/ Results From the VISIONARY Clinical Trial of Sibeprenlimab in Patients With IgA Nephropathy by Madaline Spencer| Published on: Jun 29, 2026 Vlado Perkovic, MD, Professor of Medicine and Provost at the University of New South Wales Sydney, discusses results from the VISIONARY clinical trial testing Voyxact (sibeprenlimab) in patients with IgA nephropathy (IgAN). https://checkrare.com/results-from-the-visionary-clinical-trial-of-sibeprenlimab-in-patients-with-iga-nephropathy/ DAHLIAS Clinical Trial Evaluating Nipocalimab in Sjögren’s Disease by Madaline Spencer| Published on: Jul 23, 2026 Robert Hal Scofield, MD, Professor of Medicine, at the University of Oklahoma and Oklahoma Medical Research Foundation, discusses the DAHLIAS clinical trial evaluating nipocalimab in Sjögren’s disease (SjD). https://checkrare.com/dahlias-clinical-trial-evaluating-nipocalimab-in-sjogrens-disease/ https://checkrare.com/