Effectiveness of a comprehensive educational programme for Accredited Social Health Activists (ASHAs) to identify individuals in the Udupi district with bleeding disorders: A community-based survey.

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Last Posted: Aug 16, 2018

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• Effectiveness of a comprehensive educational programme for Accredited Social Health Activists (ASHAs) to identify individuals in the Udupi district with bleeding disorders: A community-based survey.
  Badagabettu S et al. Haemophilia : the official journal of the World Federation of Hemophilia 2018 Aug
• Factor IX Gene (F9) Genotyping Trends and Spectrum of Mutations Identified: A Reference Laboratory Experience.
  Perez Botero Juliana et al. Seminars in thrombosis and hemostasis 2018 Apr 44(3) 287-292
• They Thought Hemophilia Was a ‘Lifelong Thing.’ They May Be Wrong. Experimental gene therapies have yielded promising results in early trials. But the drugs have left some patients wary, worried that success will not last. 
  G Kolata, New York Times, August 13, 2018
• Gene therapy in hemophilia A: a cost-effectiveness analysis.
  Machin Nicoletta et al. Blood advances 2018 Jul 2(14) 1792-1798
• FDA Issues Set of Gene Therapy Draft Guidances
  Global Genes, July 11, 2018
• When you have a serious hereditary disease, who has a right to know
  S Raviv, Mosaic, Wellcome, July 11, 2018
• Are Payers Ready To Address The Financial Challenges Associated With Gene Therapy?
  Health Affairs Blog, June 28, 2018
• Genetic Risk Factors and Inhibitor Development in Hemophilia: What Is Known and Searching for the Unknown.
  Margaglione Maurizio et al. Seminars in thrombosis and hemostasis 2018 Jun
• Community Counts 
  Explore health issues, medical complications, and causes of death that affect people with bleeding disorders who receive care at U.S. Hemophilia Treatment Centers
• Basics About Hemophilia 

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