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Last Posted: Aug 16, 2018
- Effectiveness of a comprehensive educational programme for Accredited Social Health Activists (ASHAs) to identify individuals in the Udupi district with bleeding disorders: A community-based survey.
Badagabettu S et al. Haemophilia : the official journal of the World Federation of Hemophilia 2018 Aug - Factor IX Gene (F9) Genotyping Trends and Spectrum of Mutations Identified: A Reference Laboratory Experience.
Perez Botero Juliana et al. Seminars in thrombosis and hemostasis 2018 Apr 44(3) 287-292 - They Thought Hemophilia Was a ‘Lifelong Thing.’ They May Be Wrong. Experimental gene therapies have yielded promising results in early trials. But the drugs have left some patients wary, worried that success will not last.
G Kolata, New York Times, August 13, 2018 - Gene therapy in hemophilia A: a cost-effectiveness analysis.
Machin Nicoletta et al. Blood advances 2018 Jul 2(14) 1792-1798 - FDA Issues Set of Gene Therapy Draft Guidances
Global Genes, July 11, 2018 - When you have a serious hereditary disease, who has a right to know
S Raviv, Mosaic, Wellcome, July 11, 2018 - Are Payers Ready To Address The Financial Challenges Associated With Gene Therapy?
Health Affairs Blog, June 28, 2018 - Genetic Risk Factors and Inhibitor Development in Hemophilia: What Is Known and Searching for the Unknown.
Margaglione Maurizio et al. Seminars in thrombosis and hemostasis 2018 Jun - Community Counts
Explore health issues, medical complications, and causes of death that affect people with bleeding disorders who receive care at U.S. Hemophilia Treatment Centers - Basics About Hemophilia
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