martes, 21 de agosto de 2018

Can’t find a trial that fits you? Consider joining a registry!

NIA E-News

Join a registry or matching service to let researchers know you’d like to participate in local and national Alzheimer’s disease and dementia studies.
Registries help speed up trials by giving researchers a list of “willing and able” potential participants. People who sign up may be referred to specific studies but are not obligated to participate. Some studies may be simple, like a survey, and can be done anywhere.
The following registries accept adult participants with a variety of backgrounds.
Alzheimer’s Prevention Registry
Open to individuals age 18 and older who are interested in learning about and possibly participating in Alzheimer’s prevention clinical studies and trials.
Alzheimer’s Prevention Trials (APT) Webstudy 
Online registry designed to accelerate enrollment into Alzheimer's clinical trials. Open to individuals 50 and older. Take online tests to assess memory and thinking skills, gain access to scores, and be notified of opportunities for in-person assessments and clinical trials.
Brain Health Registry 
Open to individuals age 18 and older who want to promote healthy brain function by preventing brain diseases, disorders, and injuries. Take online tests and learn about opportunities to participate in a wide range of studies.
FTD Disorders Registry
A contact and research registry for people diagnosed with frontotemporal disorders (FTD); open to family members, caregivers, or friends of people diagnosed with FTD.
GeneMatch
Open to adults age 55 to 75 who are interested in enrolling in Alzheimer’s genetics studies.
ResearchMatch 
A service, funded by the National Institutes of Health, that helps match people of all ages interested in clinical trials with researchers. ResearchMatch requires an email address.
TrialMatch 
The Alzheimer’s Association’s clinical studies matching service for individuals with Alzheimer’s, caregivers, and healthy volunteers.
For further assistance with finding opportunities to participate in research, contact the NIA ADEAR Center at 1-800-438-4380 or adear@nia.nih.gov.

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