jueves, 10 de mayo de 2018

Preliminary programme out: 27th ERTC workshop ‘Patient engagement in the product life-cycle & community advisory boards’

EURORDIS - The Voice of Rare Disease Patients in Europe

Eurordis, Rare Diseases Europe

The Voice of Rare Disease
Patients in Europe


27th EURORDIS Round Table of Companies Workshop

"Patient engagement in the product life-cycle and community advisory boards (CAB)"

Tuesday, 16 October 2018 (09:00 to 17:00)
Registration for this event will open in summer.
Attendance at this event is recommended for the following target audience:
  • Pharmaceutical and biotech representatives working in:
  • Clinical Project Management, Science Policy, Clinical Development, Medical Science, Research, Medical & Innovation, Medicines Development, Research & Development, External Science & Partnering, Clinicial Scientists
  • Regulatory Affairs
  • Patient Advocacy, Public Affairs, Patient Engagement, Patient Partnership, Patient Support
  • Pharmaceutical and biotech companies engaging in Scientific Advice / HTA meetings
  • Clinical Research Organisations (CROs)
  • Medical devices companies
  • Rare disease patient representatives engaged in active CABs or those in creation
  • Rare disease patient advocates representing groups that co-sponsor clinical trials / joint ventures with the healthcare industry
  • Representatives from non-profit organisations/foundations developing medicines/therapies for rare diseases
Recinte Modernista de Sant Pau
Carrer de Sant Antoni Maria Claret, 167
08025 Barcelona
Welcome Dinner:
There will be a Welcome dinner on Monday, 15 October starting at 8 p.m.
Venue to be confirmed.
Dress code: smart casual.
There will be a complimentary return bus service provided from the restaurant to the AYRE HOTEL ROSELLON.
Please make your own hotel reservations and travel arrangements. A list of hotels close to the workshop venue will be provided soon.
Please send any questions concerning registration to Anne-Mary Bodin: anne-mary.bodin@eurordis.org or Emilie Zingg: Emilie.zingg@eurordis.org

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