sábado, 20 de enero de 2018

EURORDIS - The Voice of Rare Disease Patients in Europe

EURORDIS - The Voice of Rare Disease Patients in Europe

Eurordis, Rare Diseases Europe

The Voice of Rare Disease
Patients in Europe

26th EURORDIS Round Table of Companies Workshop

Rare disease therapies: do you get what you incentivise?

Wednesday, 21st February 2018
Registration open soon

Workshop outline

The development of rare diseases therapies requires the right regulatory, economic and political ecosystem to ensure that investments are made in areas where research would not otherwise be carried out. The current European regulatory framework has brought enormous benefits to the rare disease community in terms of the number of orphan designations and indications, as well as paediatric medicines. However, there is increasing political scrutiny of incentives for research and development constantly linked with the high price of innovative medicinal products, whilst at the same time the vast majority of rare diseases are not yet covered by an appropriate therapy. Whilst the current incentives systems have addressed many issues, some remain.
This workshop will try to take a balanced look at the role of incentives in therapies development, address shortcomings of the current system and consider what else the rare disease community can do to fulfil important unmet medical needs.



Registration will open on 15th January 2018.
Please address any questions to Emilie Zingg at Emilie.zingg@eurordis.org


Hotel Le Plaza Brussels
Boulevard Adolphe Max 118 - 126, Brussels, Belgium
Tel. + 32 2 278 01 00
Metro Station: Rogier


Please make your own hotel reservations and travel arrangements.
EURORDIS has booked a block of rooms and has negotiated special rates at the Hotel Le Plaza for the nights of 20 and 21 February 2018. If you wish to make a reservation at the Hotel Le Plaza, please contact the reservation department directly (Tel. +32 2 278 01 00 / reservations@leplaza.be).
Single occupancy: 205 Euros per night including breakfast*
Double occupancy: 234 Euros per night including breakfast*
*City Tax is not included in the room rate - a supplement of 4.24 € per room per night will be applied


Join colleagues across the rare disease community to network and support the rare disease cause at the EURORDIS Black Pearl Awards the evening before the workshop. For more information, please visit: blackpearl.eurordis.org


Please send any questions to Emilie Zingg: Emilie.zingg@eurordis.org or Anne-Mary Bodin: Anne-mary.bodin@eurordis.org

ECRD 2018

Register now or submit a poster abstract!
Registration open for the European Conference on Rare Diseases & Orphan Products 2018 Vienna!

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