We are not just carriers. +...

https://rememberthegirls.org/ 10 Minutes With... We have just broadcast our latest episode of 10 Minutes With..., in which our colleague Rhiannon Walls speaks with Taylor Kane, founder and Executive Director of Remember The Girls. Taylor Kane's advocacy journey began in childhood, shaped by her own and her family's experience of adrenoleukodystrophy (ALD). This conversation highlights the importance of young voices in rare disease advocacy, the value of young people having their voices heard directly and what it takes to turn lived experience into action. https://www.eurordis.org/10-minutes-with-rhiannon-walls/