Position Statement: An Urgent Call for EU-Level Collaboration on Newborn Screening

https://www.eurordis.org/publications/position-statement-eu-level-collaboration-on-newborn-screening/ EURORDIS has published a joint statement from rare disease community members and organisations, calling upon the European Union to establish a multi-stakeholder Newborn Screening Group to support Member States in strengthening NBS programmes. https://form.jotform.com/eurordisforms/endorse-eurordis-nbs-statement EURORDIS recently published a position statement on EU collaboration on newborn screening, calling on the EU to establish a multi-stakeholder Newborn Screening (NBS) Group. The proposed group would help Member States strengthen NBS programmes and address major inequalities across Europe. To mark NBS Awareness Month, organisations can still endorse the Position Statement and support the call for a more coordinated European approach until 30 September.