The Voice of Rare Disease
Patients in Europe
CAB members are people living with the specific condition, a close family member or carer, and/or a member of a patient organisation.
If you are a patient representative, you can contact the patient organisation in your country or the European/ international federation for your disease to see if they are aware of an existing CAB for your disease. Any CAB should have open contacts, a vetting process and adhere to the Code of Practice for the Relations between Patients’ Organisations and the Healthcare Industry.