CODE OF PRACTICE BETWEEN PATIENTS’ ORGANISATIONS1 AND THE HEALTHCARE INDUSTRY

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The Voice of Rare Disease
Patients in Europe

CAB members are people living with the specific condition, a close family member or carer, and/or a member of a patient organisation.

If you are a patient representative, you can contact the patient organisation in your country or the European/ international federation for your disease to see if they are aware of an existing CAB for your disease.  Any CAB should have open contacts, a vetting process and adhere to the Code of Practice for the Relations between Patients’ Organisations and the Healthcare Industry.