domingo, 27 de noviembre de 2016

My Identical Twin Sequenced our Genome. - PubMed - NCBI

My Identical Twin Sequenced our Genome. - PubMed - NCBI
 2016 Nov 16. [Epub ahead of print]

My Identical Twin Sequenced our Genome.


With rapidly declining costs, whole genome sequencing is becoming feasible for widespread use. Although cost-effectiveness is driving increased use of the technology, comprehensive recommendations on how to handle ethical dilemmas have yet to reach a consensus. In this article, Sam shares her experience of undergoing whole genome sequencing. Despite the deeply private nature of the test, the results do not solely belong to Sam; her identical twin sister, Arielle, shares virtually the same genome and received results without a formal consent process. This article explores their parallel experiences as a way of highlighting the controversial ethics of a private test with familial implications.


Bioethics; Genetic testing; Identical twins; Informed consent; Privacy; Whole genome sequencing
[PubMed - as supplied by publisher]

No hay comentarios:

Publicar un comentario