domingo, 27 de noviembre de 2016

My Identical Twin Sequenced our Genome. - PubMed - NCBI

My Identical Twin Sequenced our Genome. - PubMed - NCBI
 2016 Nov 16. [Epub ahead of print]

My Identical Twin Sequenced our Genome.

Abstract

With rapidly declining costs, whole genome sequencing is becoming feasible for widespread use. Although cost-effectiveness is driving increased use of the technology, comprehensive recommendations on how to handle ethical dilemmas have yet to reach a consensus. In this article, Sam shares her experience of undergoing whole genome sequencing. Despite the deeply private nature of the test, the results do not solely belong to Sam; her identical twin sister, Arielle, shares virtually the same genome and received results without a formal consent process. This article explores their parallel experiences as a way of highlighting the controversial ethics of a private test with familial implications.

KEYWORDS:

Bioethics; Genetic testing; Identical twins; Informed consent; Privacy; Whole genome sequencing
PMID:
 
27853911
 
DOI:
 
10.1007/s10897-016-0046-7
[PubMed - as supplied by publisher]

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