domingo, 1 de mayo de 2016

Parental Decision Making Regarding the Disclosure or Nondisclosure of a Mutation-Positive BRCA1/2 Test Result to Minors. - PubMed - NCBI

Parental Decision Making Regarding the Disclosure or Nondisclosure of a Mutation-Positive BRCA1/2 Test Result to Minors. - PubMed - NCBI



 2016 May 1;43(3):330-41. doi: 10.1188/16.ONF.330-341.

Parental Decision Making Regarding the Disclosure or Nondisclosure of a Mutation-Positive BRCA1/2 Test Result to Minors.

Abstract

PURPOSE/OBJECTIVES:

To gain insight into parental decision making regarding the disclosure or nondisclosure of a mutation-positive BRCA1/2 test result to minors.
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RESEARCH APPROACH:

A qualitative study based on Heidegger hermeneutic phenomenology was undertaken to explore the lived experience of parental decision making regarding high-risk BRCA1/2 disclosure.
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SETTING:

The study's recruitment site was a western Canadian hereditary breast and ovarian cancer clinic.
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PARTICIPANTS:

Fifteen female mutation-positive BRCA1/2 carriers who had at least one child aged 6-18 years.
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METHODOLOGIC APPROACH:

The use of a demographic questionnaire, semistructured interviews, and conversation summaries were employed to gain an understanding of participants' lived experience. van Manen's selective approach was used to conduct a thematic analysis.
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FINDINGS:

Collectively, parents wanted clinicians to discuss implications of disclosing and not disclosing a mutation-positive BRCA1/2 test result to minors in greater detail. The findings were categorized under the following emergent themes.

CONCLUSIONS:

Participants' stories identified the need for auxiliary support pertaining to the decision-making process and suggested ways in which parental support may be coordinated.
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INTERPRETATION:

Oncology nurses with advanced genetics training should assist mutation-positive BRCA1/2 carriers in meeting their genetic risk information needs; this requires nurses to stay informed about a multitude of issues that affect this population of patients.

KEYWORDS:

BRCA1/2; breast; cancer; hereditary; minors; oncology; ovarian

PMID:
 
27105194
 
[PubMed - in process]

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