New Strategies For Public Health Genomics Beyond Newborn Screening
October 3rd, 2012 11:07 am ET - Scott Bowen, Office of Public Health Genomics, Centers For Disease Control and Prevention
Karen Greendale, Office of Public Health Genomics, Centers For Disease Control and Prevention
A Working Meeting and an Action Plan
to Save Lives Now
Nearly 2 million Americans are affected by one of three genetic conditions with a strong risk of early morbidity and mortality: BRCA 1/2 with hereditary breast and ovarian cancer; Lynch syndrome and colorectal cancer; and familial hypercholesterolemia and early cardiovascular events. At present these conditions are poorly identified by the healthcare system butevidence based recommendations are available to prevent disease and improve health
Opening speaker, Dr. Ursula Bauer Director, NCCDPHP discusses a point later in the day with Dr. Khoury, OPHG Director
The day’s work centered around: reviewing the evidence of effectiveness in implementing available interventions; identifying opportunities, strategies, and models; and identifying the means to achieve success for these new and cost effective public health programs.
Using the “Health Impact Pyramid”
Said Deb Duquette MS, CGC of the Michigan Department of Community Health, one of several state representatives present at the event, “Clearly work to inform policy change is critical for Tier 1 programs and has been a major part of our success in Michigan. This was particularly true where healthcare coverage for the USPSTF BRCA 1/2 recommendation was expanded to seven million people in our state. The public health impact for the dollar is large in the policy area and this model can be applied in many other states. “
At the end of the day, a public health action plan was assembled to implement these strategies through state public health departments in partnership with health care payers and providers:
- Incorporate and build on the previous success of state public health genomics programs, in particular by employing new policy implementation approaches
- Develop and use standardized protocols as a guide for Tier 1 program activities;
- Develop and distribute standardized communication materials for Tier 1 applications including educational materials for patients, providers, and public health practitioners;
- Develop and use standardized surveillance indicators, such as those for HP2020 to measure success and integrate synergistically with provider/payer systems;
- Collaborate and share lessons learned with other states and partners such as what is being done with the Lynch Syndrome Screening Network
(LSSN);
- Conduct cascade screening
(identifying relatives at risk from case patients) pilot projects and consider the scalability and cost effectiveness of broader programs that use it ;
- Build strong partnerships toward mutual goals which include healthcare payers, healthcare providers, advocacy groups, and other key stakeholders;
- Stay abreast of changes in the field as new applications with sufficient evidence for implementation become available.
New Strategies in Public Health Genomics: Actions to Save Lives NowAtlanta, GeorgiaSeptember 7, 2012
Planning Committee: | Sylvia Au – Hawaii State Department of Health Scott Bowen – Centers for Disease Control & Prevention Summer Cox – Oregon Health Authority Rebecca Giles – Utah Department of Health Asthma Program Karen Greendale – Centers for Disease Control & Prevention Katherine Johansen Taber – The American Medical Association Jenna McLosky – Michigan Department of Community Health James O’Leary – Genetic Alliance Patricia Page – Emory University Joan Scott – National Coalition for Health Professional Education in Genetics Amy Zlot – Oregon Health Authority |
Speakers: | Lynch Syndrome speaker 1: Heather Hampel – The Ohio State University Lynch Syndrome speaker 2: Debra Duquette – Michigan Department of Community Health Hereditary Breast and Ovarian Cancer speaker 1: Mark Robson – Memorial Sloan-Kettering Cancer Center Hereditary Breast and Ovarian Cancer speaker 2: Amber Roche – Public Health Seattle & King County Familial Hypercholesterolemia speaker 1: James Underberg – NY School of Medicine and NYU Center for Prevention of Cardiovascular Disease Familial Hypercholesterolemia speaker 2: Joan Ware – National Association of Chronic Disease Directors |
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