Recognising the need for greater investment into RARE skin disorders

https://editions.rarerevolutionmagazine.com/html5/reader/production/default.aspx?pubname=&edid=e0508b93-1cde-4785-b9ae-c36724bde55a Recognising the need for greater investment into RARE skin disorders The Summer 2026 edition of RARE Revolution magazine (Issue 036) centres on the profound impact of rare skin disorders, reframing the conversation from "cosmetic" concerns to an exploration of systemic health and human rights gaps. Supported by UCB, this issue advocates for greater investment and medical expertise in dermatology, highlighting that as the body's largest organ, the health of our skin is a priority for all. Featuring: The "mother-centric" care model: An in-depth look at DEBRA Russia and the 'Rare Women' project, which uses data to show how a mother's emotional wellbeing directly influences her child's clinical outcomes in genetic skin diseases. Global advocacy milestones: An interview with Antoine Gliksohn of the Global Albinism Alliance on the landmark achievement of adding sunscreen to the WHO Essential Medicines List. The future of dermatology: Exploration of surgical innovations, such as Mohs micrographic surgery, and the integration of AI and gene editing to transform patient care, from Dr Richard Barlow. The reality of stigma: A critical analysis of the societal bias and "invisible" burdens faced by those with rare skin conditions, featuring insights from DEBRA International president Dr Ritu Jain. Personal choice in care: A comparative perspective on wound care, weighing the benefits of parent-led management versus professional nursing support to achieve family sustainability. Genomic revolution: Inside the British Association of Dermatologists (BAD) Skin Genetics Group’s work to mainstream genomic testing and improve diagnostic pathways. Philanthropic Funding: Examining how patient-led research models are de-risking drug development and accelerating new therapies for rare conditions. You can view this publication from a desktop, laptop, mobile or tablet and it is packed with interactive links so you can enjoy the best possible experience when engaging with the content. And don't forget you can also view from our website at any time, along with lots of other great digital content. www.rarerevolutionmagazine.com