RARE Revolution RARE Bite +...

https://editions.rarerevolutionmagazine.com/html5/reader/production/default.aspx?pubname=&edid=cfec555e-0bf6-4813-9494-6b9538dbfd94&pnum=64 The topic of disease classification may sound dry and technical—an issue for coders, not for families. But for Dan Lewi of the CATS Foundation and Toni Mathieson, NPUK, it’s anything but abstract. It’s about who gets diagnosed, who gets a care plan, who gets access to trials and treatments—and conversely who gets left behind.