lunes, 25 de mayo de 2026
EURORDIS Paper: Importance of Psychological Support for Living Well with a Rare Condition April 2026
https://www.eurordis.org/publications/eurordis-report-importance-of-psychological-support-for-living-well-with-a-rare-condition/
This latest literature review published by EURORDIS explores the importance of psychosocial support for people living with a rare disease, calling for more holistic, multidisciplinary care models with mental health support embedded throughout care pathways. A companion literature review examines the specific psychological needs of people living with a rare condition.
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